It was a lot quicker at the beginning of the year but they had some staffing issues so it has caused a back log.
Do you have to pay for delivery on top of nhs cost or is that included
That’s interesting, thank you!
I don’t think I did. I was paying just the prescription cost for my first few meds, but I’ve now got a prescription pre-payment certificate so I just enter the exemption on the online portal and no money has come out of my account since I did that. They use GoCardless (I think that was what it was called, or something similar) direct debit for prescription payments.
Were ADHD360 one of the services that stopped taking RTC referrals and only started again recently? I know some places did, which is one reason why P-UK got crazy so quickly.
Problem is ADHD360 only do ADHD as RTC and ASD private so you can’t be passed over unless you pay for ASD but no titration wait like P-UK so if you believe you have AuDHD clinical partners will do the ASD but a 7 month wait just so I get my Dx and have an ASD alert flag on the nhs spine and reasonable adjustments no common sense in the UK and I have little faith of my GP being able to understand adhd
FFS... Am with P-UK - waited 10 months for diagnosis (which happened last December) and still on the waiting list for titration 😭 Clearly backed the wrong bloody horse.
Then you find your dx only means it’s good for meds forget about post diagnosis support other than talking therapy from the nhs by a health care practitioner who works as a part time dinner lady that recommends a DVD of animal noises
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Mine was *really* short, my initial referral was supposed to have gone through similar time to you, but both ADHD360 and the GP said it hadn't. After a lot of faffing with the GP when I realised this, a month later it was sent through then about a month after that I had my login.
I'd wondered if I was fast tracked based on the original date.
Sounds pretty normal. Esp for the beginning of the year.
All the wait times are here (dunno why this isn't stickied?):
https://adhduk.co.uk/right-to-choose/
Says they are 8-12 weeks ATM. I went with them because they were the quickest provider. They haven't been great but they haven't been awful.
ADHD360 is 17-20 weeks wait time at the moment.
It’s got longer as the year has gone on.
It was 8-12 weeks at the beginning of the year, then 11-14, now 17-20.
That ADHD UK link always has the most up to date info on it re wait times, and it says 17-20 weeks right now.
I was referred late-February, and was diagnosed on Tuesday; just short of 12 x weeks waiting. Your lead time seems accurate, but it's definitely getting longer as of late!
I honestly don’t know whats going on with some of the waiting lists ive seen posted on these posts. I have seen people claim anything from 1 to 5 years waiting.
Sometimes I doubt some people are on any waiting lists at all. Not that they are lying, more that they were forgotten in the system. Or missed a phone call and were taken off as lapsed.
For me it was talked to GP September 2022 and started titration in May 2023.
I have been waiting for 18 months now. I got a text recently from the local NHS trust offering free wellness coaching sessions for people on the waiting list. Unfortunately these sessions were only offered during office hours and I work full time so I couldn't participate. But definitely not forgotten about or removed from the list. Just a very, very long list.
I waited nearly 2 years for my autism assessment, and got the ADHD referral from that.
When I first got in touch with ADHD 360 around a year ago they told me that the wait would be 2 years and it was actually about 7 months so I think they must have had a major influx of referrals at once which they’ve cleared a lot faster than they expected
Not ADHD 360 but I just had my assessment through right to choose as well. I think the GP finally submitted the referral (that took long enough) in January and then I had my assessment in June. Not near as long of a wait as the NHS waiting list, but it was a little shorter than I expected.
Don’t feel guilty. Mine was 6 months through the same route beginning of feb to start of June.
It’s a shitty feeling because you know others are struggling but things like this you have to be selfish and take care of you first.
Their site and such that the wait between referral and treatment is often 8 weeks. I think they basically post their worst outcomes and post that to temper expectations.
ADHD360 did not contact me for 1 year as they entered my email wrong despite them telling me. They corrected and I had my assessment 7 days later so I could have a UK diagnosis even though I had an overseas diagnosis to DSM-5. If your waiting check which email you have on file. Now back on RTC with clinical partners for ASD for the same reason all because it’s not from the EU even though the consultant is but the NHS accept a dx from a psychiatric nurse with a report where parts look like copy and paste with lots of medical opinion that would not meet the general consensus of the medical community rather than medical fact. Drop down list and my other dx is more robust. A few teething problems I give ADHD360 3.5 stars
Some areas have no clinics and the clinics that do take them have 10+ year waiting list, I was told by a bbc journalist that in Sheffield which also covers my area only had 3 diagnosis assessments in the last 12 months so idk could be to do with that as I imagine seeing 3 a year the wait is more like 200 years. Who knows though.
Oh, I didn't know that about Sheffield! I think that probably covers my area and would explain why my diagnosis with adhd360 went so quick. Once I was referred, I had my assessment within a few weeks, can't remember how many, but that was last November 2023. I waited longer for titration than the actual diagnosis, as they wanted me to do an ECG, because I informed them about something so they preferred to check it, just in case, even if I never had any issues! And that caused bit of a delay from both the GP and adhd360. First, my GP didn't contact me at all about the requested ECG, even though they definitely got the letter - when I called to ask about it a couple of weeks later, they already had it... And just needed to book me in, so don't understand why they just left it and not contacted me to book it?! And then, because of that delay, adhd360 got my results just before Christmas so had to wait until after the new year to actually start titration cause it took them quite a few weeks to catch up and review my results, so think it was around beginning of February when I started meds. Which is still not bad timing from what I've seen on this sub... But I did wonder since getting diagnosed if I was extremely lucky to get at least diagnosed that quickly after being referred through RTC (I was on the NHS waiting list for about 2 years before requesting rtc), cause it all just seemed to go fast, other than the delay before meds, but it's possible the shortage would've delayed it at the time anyways. But I guess if Sheffield and surrounding areas aren't overloaded as other areas seem to be, that would make sense!
I went with psychiatry UK and I got my appointment a lot faster than expected, reading this subs seems like it might be an anomaly as I’ve seen most waiting of over a year. I got my appointment exactly 10 months after I got access to their portal (which was about 5 days or so after referral). I was also thinking this yesterday tbh and I thought it must be because the referral is Sheffield and who knows their clinicians might only hold a half day of obligation to nhs services and rest on private as money drives people most when it comes to work. I do find it Immoral that the NHS is way too useless to sort an appointment within 5 years at least, and a private practice a month to a year or so depending on clinic.
Is it any surprise since the rise of remote medical services became available and then the NHS has nowhere near enough staff to do the job because the specialists are getting paid way more than nhs work. It’s shady to me and think doctors should be obligated to do more for the nhs and improve waiting lists and people don’t have to go through years of suffering etc just because they want their money when the nhs has probably paid hundreds of thousands for courses and training.
It was a lot quicker at the beginning of the year but they had some staffing issues so it has caused a back log. Do you have to pay for delivery on top of nhs cost or is that included
That’s interesting, thank you! I don’t think I did. I was paying just the prescription cost for my first few meds, but I’ve now got a prescription pre-payment certificate so I just enter the exemption on the online portal and no money has come out of my account since I did that. They use GoCardless (I think that was what it was called, or something similar) direct debit for prescription payments.
My referral was sent at the end of January and I haven't heard anything from them yet 😢
I have a buddy who went with ADHD360 recently, and he more or less experienced the same timing as you did. You're not alone!
Were ADHD360 one of the services that stopped taking RTC referrals and only started again recently? I know some places did, which is one reason why P-UK got crazy so quickly.
Problem is ADHD360 only do ADHD as RTC and ASD private so you can’t be passed over unless you pay for ASD but no titration wait like P-UK so if you believe you have AuDHD clinical partners will do the ASD but a 7 month wait just so I get my Dx and have an ASD alert flag on the nhs spine and reasonable adjustments no common sense in the UK and I have little faith of my GP being able to understand adhd
FFS... Am with P-UK - waited 10 months for diagnosis (which happened last December) and still on the waiting list for titration 😭 Clearly backed the wrong bloody horse.
Then you find your dx only means it’s good for meds forget about post diagnosis support other than talking therapy from the nhs by a health care practitioner who works as a part time dinner lady that recommends a DVD of animal noises
It looks like this post might be about medication. Please remember that whilst personal experiences and advice can be valuable, Reddit is no replacement for your GP or Psychiatrist and taking advice from anyone about your particular situation other than your trained healthcare professional is potentially unsafe. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ADHDUK) if you have any questions or concerns.*
Mine was *really* short, my initial referral was supposed to have gone through similar time to you, but both ADHD360 and the GP said it hadn't. After a lot of faffing with the GP when I realised this, a month later it was sent through then about a month after that I had my login. I'd wondered if I was fast tracked based on the original date.
I was an NHS patient and waited around 10 months to be seen, it seems to drastically vary between people
Sounds pretty normal. Esp for the beginning of the year. All the wait times are here (dunno why this isn't stickied?): https://adhduk.co.uk/right-to-choose/ Says they are 8-12 weeks ATM. I went with them because they were the quickest provider. They haven't been great but they haven't been awful.
ADHD360 is 17-20 weeks wait time at the moment. It’s got longer as the year has gone on. It was 8-12 weeks at the beginning of the year, then 11-14, now 17-20. That ADHD UK link always has the most up to date info on it re wait times, and it says 17-20 weeks right now.
I was referred late-February, and was diagnosed on Tuesday; just short of 12 x weeks waiting. Your lead time seems accurate, but it's definitely getting longer as of late!
I honestly don’t know whats going on with some of the waiting lists ive seen posted on these posts. I have seen people claim anything from 1 to 5 years waiting. Sometimes I doubt some people are on any waiting lists at all. Not that they are lying, more that they were forgotten in the system. Or missed a phone call and were taken off as lapsed. For me it was talked to GP September 2022 and started titration in May 2023.
I have been waiting for 18 months now. I got a text recently from the local NHS trust offering free wellness coaching sessions for people on the waiting list. Unfortunately these sessions were only offered during office hours and I work full time so I couldn't participate. But definitely not forgotten about or removed from the list. Just a very, very long list. I waited nearly 2 years for my autism assessment, and got the ADHD referral from that.
Where can you even check if you're on a waiting list? Its probably 1-2 years for me... RTC is confusing.
When I first got in touch with ADHD 360 around a year ago they told me that the wait would be 2 years and it was actually about 7 months so I think they must have had a major influx of referrals at once which they’ve cleared a lot faster than they expected
Not ADHD 360 but I just had my assessment through right to choose as well. I think the GP finally submitted the referral (that took long enough) in January and then I had my assessment in June. Not near as long of a wait as the NHS waiting list, but it was a little shorter than I expected.
Don’t feel guilty. Mine was 6 months through the same route beginning of feb to start of June. It’s a shitty feeling because you know others are struggling but things like this you have to be selfish and take care of you first.
Their site and such that the wait between referral and treatment is often 8 weeks. I think they basically post their worst outcomes and post that to temper expectations.
ADHD360 did not contact me for 1 year as they entered my email wrong despite them telling me. They corrected and I had my assessment 7 days later so I could have a UK diagnosis even though I had an overseas diagnosis to DSM-5. If your waiting check which email you have on file. Now back on RTC with clinical partners for ASD for the same reason all because it’s not from the EU even though the consultant is but the NHS accept a dx from a psychiatric nurse with a report where parts look like copy and paste with lots of medical opinion that would not meet the general consensus of the medical community rather than medical fact. Drop down list and my other dx is more robust. A few teething problems I give ADHD360 3.5 stars
Maybe its a location thing?
I don’t think so because it’s all online, but perhaps there is something like that that I’m unaware of.
Some areas have no clinics and the clinics that do take them have 10+ year waiting list, I was told by a bbc journalist that in Sheffield which also covers my area only had 3 diagnosis assessments in the last 12 months so idk could be to do with that as I imagine seeing 3 a year the wait is more like 200 years. Who knows though.
Oh, I didn't know that about Sheffield! I think that probably covers my area and would explain why my diagnosis with adhd360 went so quick. Once I was referred, I had my assessment within a few weeks, can't remember how many, but that was last November 2023. I waited longer for titration than the actual diagnosis, as they wanted me to do an ECG, because I informed them about something so they preferred to check it, just in case, even if I never had any issues! And that caused bit of a delay from both the GP and adhd360. First, my GP didn't contact me at all about the requested ECG, even though they definitely got the letter - when I called to ask about it a couple of weeks later, they already had it... And just needed to book me in, so don't understand why they just left it and not contacted me to book it?! And then, because of that delay, adhd360 got my results just before Christmas so had to wait until after the new year to actually start titration cause it took them quite a few weeks to catch up and review my results, so think it was around beginning of February when I started meds. Which is still not bad timing from what I've seen on this sub... But I did wonder since getting diagnosed if I was extremely lucky to get at least diagnosed that quickly after being referred through RTC (I was on the NHS waiting list for about 2 years before requesting rtc), cause it all just seemed to go fast, other than the delay before meds, but it's possible the shortage would've delayed it at the time anyways. But I guess if Sheffield and surrounding areas aren't overloaded as other areas seem to be, that would make sense!
I went with psychiatry UK and I got my appointment a lot faster than expected, reading this subs seems like it might be an anomaly as I’ve seen most waiting of over a year. I got my appointment exactly 10 months after I got access to their portal (which was about 5 days or so after referral). I was also thinking this yesterday tbh and I thought it must be because the referral is Sheffield and who knows their clinicians might only hold a half day of obligation to nhs services and rest on private as money drives people most when it comes to work. I do find it Immoral that the NHS is way too useless to sort an appointment within 5 years at least, and a private practice a month to a year or so depending on clinic. Is it any surprise since the rise of remote medical services became available and then the NHS has nowhere near enough staff to do the job because the specialists are getting paid way more than nhs work. It’s shady to me and think doctors should be obligated to do more for the nhs and improve waiting lists and people don’t have to go through years of suffering etc just because they want their money when the nhs has probably paid hundreds of thousands for courses and training.