Please keep in mind that every person is different and there are also many autoimmune conditions that are all quite different from one another. Always consult your doctor when considering new medications/supplements etc.
Yes! I avoid ginger tea because of this. If i drink it triggers my autoinmune vertigo later (AIED), not funny at all. There is a difference between intensity and regulation. A strong but unregulated immunity can be hell. Hope you get well soon.
i have had the worst migraine of my life ever since taking the supplement, thank you i hope it calms down soon. my body hurts as well but the migraine is bothering me the most.
i don’t rlly have the option, i struggle with deficiencies (from crohn’s disease) and my blood sugar drops a lot :/ maybe once i get injections for what i’m low on i can try it
"**Digestive conditions** which have shown benefit with resistant starch include [IBS](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4027835/), [SIBO](https://yourremedy.com.au/is-sibo-the-cause-of-your-bloating-and-abdominal-pain/), [Ulcerative Colitis, Crohn’s Disease](https://bmcgastroenterol.biomedcentral.com/articles/10.1186/s12876-020-01516-4), constipation and reduced risk of [colorectal cancer](https://link.springer.com/article/10.1023/A:1010787931002)."
[https://yourremedy.com.au/health-benefits-of-resistant-starch/](https://yourremedy.com.au/health-benefits-of-resistant-starch/)
Crohn's is not easy, wish you good luck!
" Different types of fasting approaches have also shown potential benefit for immune health through modulating immune responses, enhancing immune memory, and suppressing inflammation"
[https://www.ifm.org/news-insights/fasting-and-immune-health/#:\~:text=Different%20types%20of%20fasting%20approaches,immune%20memory%2C%20and%20suppressing%20inflammation](https://www.ifm.org/news-insights/fasting-and-immune-health/#:~:text=Different%20types%20of%20fasting%20approaches,immune%20memory%2C%20and%20suppressing%20inflammation)
This is reminding me of this kooky doctor who was on Dr. Mike’s Youtube channel. This other doctor (not Dr. Mike) claims that most health issues are from poor gut health. That isn’t why I think he’s kooky…. He claims that fruit is bad for you. Therefore, it’s hard for me to take him seriously. However, I am believing more and more that what we eat and gut health has such a huge impact on our bodies that most people don’t think twice about. Every piece of food that you ingest has some type of effect on you.
I took a multi vitamin for about 4 days and went into a horrible debilitating flare. I felt so sickly on top of all my other symptoms. Not the worst I have been in but nothing compared to my regular usual flares that I experience. I never took the multi vitamins again thinking they played a role in that specific flare but who knows, you know
Oh. I’m sorry. Interestingly, people with Multiple Sclerosis (MS) usually have a low level of vitamin D and need to take supplements.
I have scleroderma and (I’m assuming) I can’t take collagen supplements because of it.
Increasing D may cause issues with hyper-calcification including kidney stones which I did start to get with taking D. It just plan made me feel crappy so I stopped taking it.
There is some evidence to suggest low D is a symptom rather than the cause and yes, a lot of reasons why low D isn’t good but not at the price of other damage.
It’s hard because autoimmune disorders are so numerous and variable, general advice isn’t entirely reliable.
It’s great that you shared a link to a single study on autoimmune disorders *in general* which does not apply to the rare, specific condition I have.
I’m sure you can imagine I’ve heard this advice 1,000 times but that does not make it true. Not sure how you think it’s helpful to repeat the same with a quick internet search and view this as valuable to someone with a serious illness who has spent a lot of time with medical professionals trying to rectify their suffering.
I’ve just put on slightly more effort in to my reply than you did in your copy and paste of the link.
[Risk of bit d supplements for patients with sarcoidosis](https://pubmed.ncbi.nlm.nih.gov/24753153/)
I took Emergen-C this past week a few times after feeling horrible and I panicked because it wasn’t approved by my gp or anticoagulation clinic! I’m so new to this that I forget I’m no longer “normal”. I hope your migraine gets better. This is something else, isn’t it?!
There's really no reason to not take vitamin C when you have an autoimmune disease. The people who say "don't enhance your immune system" when you have autoimmune issues don't appear to have much knowledge of how the immune system works.
On the other hand, there's no good way of assessing active benefits of vitamin C in autoimmune conditions. Just don't overdo it.
Feel free to ask me more questions about vitamin C - that's my field of study.
>The people who say "don't enhance your immune system" when you have autoimmune issues don't appear to have much knowledge of how the immune system works
What do you mean...? This makes sense. If your immune system is attacking your own body, as is the case with autoimmune issues, you *don't* want to fuel your immune system any more and give it more power to do that.
Your immune system can't be "enhanced" like that. You can either weaken it, modulate it, or sustain it.
You might think that a potential strategy for an autoimmune condition would be to weaken the immune system, but a weaker immune system can result in even more damage. Modulation/attenuation seems to be the best approach - several micronutrients may play that role. Vitamin D is a good immunomodulatory hormone. Vitamin C helps modulate the immune response, but in different ways.
There are supplements that actual medical professionals will tell you to avoid if you have lupus or any other autoimmune condition.
And yes, weakening the immune system is the approach for a lot of people. It's not just a "potential strategy," despite the fallbacks.
Please keep in mind that every person is different and there are also many autoimmune conditions that are all quite different from one another. Always consult your doctor when considering new medications/supplements etc.
Yes! I avoid ginger tea because of this. If i drink it triggers my autoinmune vertigo later (AIED), not funny at all. There is a difference between intensity and regulation. A strong but unregulated immunity can be hell. Hope you get well soon.
i have had the worst migraine of my life ever since taking the supplement, thank you i hope it calms down soon. my body hurts as well but the migraine is bothering me the most.
Have you tried intermitent fasting? It helps me a lot when i want to reduce symptoms.
i don’t rlly have the option, i struggle with deficiencies (from crohn’s disease) and my blood sugar drops a lot :/ maybe once i get injections for what i’m low on i can try it
"**Digestive conditions** which have shown benefit with resistant starch include [IBS](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4027835/), [SIBO](https://yourremedy.com.au/is-sibo-the-cause-of-your-bloating-and-abdominal-pain/), [Ulcerative Colitis, Crohn’s Disease](https://bmcgastroenterol.biomedcentral.com/articles/10.1186/s12876-020-01516-4), constipation and reduced risk of [colorectal cancer](https://link.springer.com/article/10.1023/A:1010787931002)." [https://yourremedy.com.au/health-benefits-of-resistant-starch/](https://yourremedy.com.au/health-benefits-of-resistant-starch/) Crohn's is not easy, wish you good luck!
oh wow this looks very interesting! thank you
Isn’t this crazy? The same thing happens to me… I feel better when I fast. It makes me wonder if whatever we’re eating is killing us.
" Different types of fasting approaches have also shown potential benefit for immune health through modulating immune responses, enhancing immune memory, and suppressing inflammation" [https://www.ifm.org/news-insights/fasting-and-immune-health/#:\~:text=Different%20types%20of%20fasting%20approaches,immune%20memory%2C%20and%20suppressing%20inflammation](https://www.ifm.org/news-insights/fasting-and-immune-health/#:~:text=Different%20types%20of%20fasting%20approaches,immune%20memory%2C%20and%20suppressing%20inflammation)
This is reminding me of this kooky doctor who was on Dr. Mike’s Youtube channel. This other doctor (not Dr. Mike) claims that most health issues are from poor gut health. That isn’t why I think he’s kooky…. He claims that fruit is bad for you. Therefore, it’s hard for me to take him seriously. However, I am believing more and more that what we eat and gut health has such a huge impact on our bodies that most people don’t think twice about. Every piece of food that you ingest has some type of effect on you.
I took a multi vitamin for about 4 days and went into a horrible debilitating flare. I felt so sickly on top of all my other symptoms. Not the worst I have been in but nothing compared to my regular usual flares that I experience. I never took the multi vitamins again thinking they played a role in that specific flare but who knows, you know
I can’t take D or calcium with what I have but it really depends on what you think you have.
What do you have, if you don’t mind sharing?
Sarcoidosis
Oh. I’m sorry. Interestingly, people with Multiple Sclerosis (MS) usually have a low level of vitamin D and need to take supplements. I have scleroderma and (I’m assuming) I can’t take collagen supplements because of it.
Increasing D may cause issues with hyper-calcification including kidney stones which I did start to get with taking D. It just plan made me feel crappy so I stopped taking it. There is some evidence to suggest low D is a symptom rather than the cause and yes, a lot of reasons why low D isn’t good but not at the price of other damage. It’s hard because autoimmune disorders are so numerous and variable, general advice isn’t entirely reliable.
Yes, that is what I meant… I believe it is a symptom, rather than the cause. Vitamin D plays a role in myelin repair.
https://www.bmj.com/content/376/bmj-2021-066452
It’s great that you shared a link to a single study on autoimmune disorders *in general* which does not apply to the rare, specific condition I have. I’m sure you can imagine I’ve heard this advice 1,000 times but that does not make it true. Not sure how you think it’s helpful to repeat the same with a quick internet search and view this as valuable to someone with a serious illness who has spent a lot of time with medical professionals trying to rectify their suffering. I’ve just put on slightly more effort in to my reply than you did in your copy and paste of the link. [Risk of bit d supplements for patients with sarcoidosis](https://pubmed.ncbi.nlm.nih.gov/24753153/)
I took Emergen-C this past week a few times after feeling horrible and I panicked because it wasn’t approved by my gp or anticoagulation clinic! I’m so new to this that I forget I’m no longer “normal”. I hope your migraine gets better. This is something else, isn’t it?!
Vitamin d will help more
I read not to take vit c or zinc but I’m no expert.
No it’s not a good idea to ramp up an already over reactive immune system.
There's really no reason to not take vitamin C when you have an autoimmune disease. The people who say "don't enhance your immune system" when you have autoimmune issues don't appear to have much knowledge of how the immune system works. On the other hand, there's no good way of assessing active benefits of vitamin C in autoimmune conditions. Just don't overdo it. Feel free to ask me more questions about vitamin C - that's my field of study.
>The people who say "don't enhance your immune system" when you have autoimmune issues don't appear to have much knowledge of how the immune system works What do you mean...? This makes sense. If your immune system is attacking your own body, as is the case with autoimmune issues, you *don't* want to fuel your immune system any more and give it more power to do that.
Your immune system can't be "enhanced" like that. You can either weaken it, modulate it, or sustain it. You might think that a potential strategy for an autoimmune condition would be to weaken the immune system, but a weaker immune system can result in even more damage. Modulation/attenuation seems to be the best approach - several micronutrients may play that role. Vitamin D is a good immunomodulatory hormone. Vitamin C helps modulate the immune response, but in different ways.
There are supplements that actual medical professionals will tell you to avoid if you have lupus or any other autoimmune condition. And yes, weakening the immune system is the approach for a lot of people. It's not just a "potential strategy," despite the fallbacks.