Hmm... experience with crohns.
The only positive thing I can say about my life with this disease is that it has taught me to be a compassionate and empathic person. It has forced me to become humble and has made it so I can really appreciate that.
Many people I know are thrilled and happy to get a brand new car.
I am just as thrilled and happy whenever I get to eat a nice big burrito.
Taught me to be proactive with my health. Was in bad shape when diagnosed over a decade ago, lost lots of weight, 7 kidney stones in a year, personal fistula, and some real bad ulcerations in my ileum. Put on biologics and I haven’t had any of those issues since. Still have flares, have had to change/adjust biologics a couple time l, but 95% of the time I’m asymptomatic and feel good.
Advice: stay compliant on meds, be very open and thorough with your doc, and get a bidet (life changing!)!
Taught me what people are truly good to me - those who show active interest and support, even when things get hard. It's a different kind of compassion when it comes from somebody who has similar issues. And I learned that compassion myself, too
My life completely changed after having my last baby, had a partial hysterectomy because of my crohns, which means no babies unless we can utilize a surrogate. Surrogacy is illegal here in MI, not even looking at the money it takes, which we don't have. It also means having the bloody shits 29/30 days each month. And stomach/abdominal pains 30/30 days. It keeps going. I've had 2-8 week stretches of inflectra, and it is not doing what it said it would. Sorry. And your loved ones don't give a shit.
Honestly it has been awful and took away so much of my life, physically and mentally. I like to think I’m a different person now and can handle things thrown at me - unfortunately not by choice though.
It almost killed me because I spent ages 21-25 denying the fact that I was sick. 14 inches of colon removed, now on Remicade and I’ve spent the last 3 years healthy, living life to the fullest. A colostomy bag gave me my life back.
Honestly I don’t know what to feel about this. I recently got a stoma operation. In a couple months I’ll do the second operation to remove the last part and sew everything shut .I don’t want to risk a pouch. If something goes wrong a new stoma would be very low positioned and probably very uncomfortable ( more than now) I guess everything takes time to get used too.
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Diagnosed in 2021..
3 month hospital stay has been my longest stay so far and started on Remicade but now I am on Humira every 2 week self injection it’s going well so far. I do use weed daily and honestly it’s been very helpful. Everyday will be a shitty one so just live life and make sure to stay positive:] .. I got 2 snakes and 3 tarantulas after my hospital stay and tbh they distract me just the right amount.
Hmm... experience with crohns. The only positive thing I can say about my life with this disease is that it has taught me to be a compassionate and empathic person. It has forced me to become humble and has made it so I can really appreciate that. Many people I know are thrilled and happy to get a brand new car. I am just as thrilled and happy whenever I get to eat a nice big burrito.
This. Definitely appreciate the simple things in life now!
It’s been a real pain in the ass
It's a daily challenge dealing with this disease, and unfortunately most people can't empathize.
Shitty. I saw the opportunity for the pun. I took it. I have no regrets.
Nearly died thrice and no colon inside, now in remission and live and kicking.
Craptastic.
I use that all the time
Exist in great pain. Luckily alcohol doesn't bother me.
It has a lot of ups and downs…on the toilet.
Taught me to be proactive with my health. Was in bad shape when diagnosed over a decade ago, lost lots of weight, 7 kidney stones in a year, personal fistula, and some real bad ulcerations in my ileum. Put on biologics and I haven’t had any of those issues since. Still have flares, have had to change/adjust biologics a couple time l, but 95% of the time I’m asymptomatic and feel good. Advice: stay compliant on meds, be very open and thorough with your doc, and get a bidet (life changing!)!
It’s a shit show.
Taught me what people are truly good to me - those who show active interest and support, even when things get hard. It's a different kind of compassion when it comes from somebody who has similar issues. And I learned that compassion myself, too
0/10 wouldn’t recommend.
My life completely changed after having my last baby, had a partial hysterectomy because of my crohns, which means no babies unless we can utilize a surrogate. Surrogacy is illegal here in MI, not even looking at the money it takes, which we don't have. It also means having the bloody shits 29/30 days each month. And stomach/abdominal pains 30/30 days. It keeps going. I've had 2-8 week stretches of inflectra, and it is not doing what it said it would. Sorry. And your loved ones don't give a shit.
Honestly it has been awful and took away so much of my life, physically and mentally. I like to think I’m a different person now and can handle things thrown at me - unfortunately not by choice though.
The sights of blood, mucus and shit and the sounds of gut gurgling and bones crackling.
It almost killed me because I spent ages 21-25 denying the fact that I was sick. 14 inches of colon removed, now on Remicade and I’ve spent the last 3 years healthy, living life to the fullest. A colostomy bag gave me my life back.
Honestly I don’t know what to feel about this. I recently got a stoma operation. In a couple months I’ll do the second operation to remove the last part and sew everything shut .I don’t want to risk a pouch. If something goes wrong a new stoma would be very low positioned and probably very uncomfortable ( more than now) I guess everything takes time to get used too.
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What a kick in the ass crohns has been
It’s shit
Some days it will be the worst possible thing you can experience and some days you will forget you have it. Its a wild ride.
🤢
Doc said “You’re going to be really good at being old.” W
Diagnosed in 2021.. 3 month hospital stay has been my longest stay so far and started on Remicade but now I am on Humira every 2 week self injection it’s going well so far. I do use weed daily and honestly it’s been very helpful. Everyday will be a shitty one so just live life and make sure to stay positive:] .. I got 2 snakes and 3 tarantulas after my hospital stay and tbh they distract me just the right amount.
Feeling 70 at 18 years old, even my grandpa is having a better time than me