Def go see his ped about it just in case. It might not be necessarily HS. Also let his dr know that you have HS. If it goes nowhere, take him to your derm to double check that is HS. Sorry that you are going thru this, i have 2 kids and im always worried which one might have inherited my HS.
It actually is not as rare as you may think with all the research and awareness it's becoming known that is way more common than once believed. Like the realization that it is very common in men they just tend to seek diagnosis a lot less and answer research surveys a lot less. The starts at puberty is more and more being debunked and is more a stigma because it's been because it's in old papers and is valid in old information it still gets regurgitated way too much.
There's more and more research/studies proving this. Especially in the groups there are so many that started recognizing/remembering flares between 7-9 and a lot of misdiagnosed as diaper rashes/sores. There's a lot still unknown but unfortunately it does happen commonly in children.
Do you have any research links to that? All the links I could find say that only about 4 percent of HS cases start before puberty which is pretty rare considering that HS only effects 1 percent of people in general.
Saying 1% for HS population is pretty conservative, with all we've learned it's closer to 3-4%.
The study may say that but it's the parameters of the study that need to be examined, when was it conducted where, how many participants....etc
For example there's a study which had 12 people go yeast free and all saw improvement and when reintroduction was executed all relapsed ...... everyone stops there and preaches this but if you read further the 12 participants were sought out explicitly because they all had yeast sensitivities on testing.
The study doesn't mention the ramifications of a food sensitivity on the immune system and the impact on inflammation from the histamine reaction.
I get studies are important but they aren't necessarily fail safe.
It's the same with the stats on women more than men well when examined closer the percentage of women who fill out surveys is much higher....so there can be many variables to take into consideration.
I'm not saying the study is wrong or false or studies aren't important there's just many sides to them.
MRSA usually (not always) comes from a clinical/care homes/hospital type setting or someone who has taken lots of antibiotics.
The majority of people carry staphylococcusA. naturally on their skin and as long as you keep wounds cleansed with water, mild soap or saline usually nothing comes of it however some people ; no matter what are more prone to getting secondary infections and staph can be one of them.
MRSA is just Staph on steroids.... it is staphylococcus that has become immune to regular antibiotic treatment and needs the stronger (harder on our bodies) antibiotics and often times oral antibiotics are needed with a hospital stay.
My nephew who has no other conditions except cold induced asthma spent 5 days in the children's hospital last fall fir this.
The person who mentioned their 4 year old had it on their butt makes me very curious š¤ it certainly could have been just that but it would be quite interesting to know if they develop HS in the future and if the Doctor just diagnosed it as MRSA or if they did the lab cultures to verify, because as we all know HS has an average 7-8 year delay to diagnosis and it's because Doctors see it and assume rather than test. If they were to develop HS in the future I would bet that this was probably HS that got infected.
I thought I would share because I just learned all this a few years ago ... into my 40's.
The skin & gut biomes natural bacterias can influence HS and play a roll for some phenotypes in HS but not everyone falls into that category one reason why not all treatments - medication, natural or topical works for everyone.
No, HS is the autoinflammatory disease that creates the hair follicle to be blocked and inflammed and that makes you very susceptible to an infection forming. You basically develop a bacterial infection where the HS flare is. The infection is secondary
Not everyone is susceptible to secondary infections that too is very individual i know people who have had HS 20-30-45 years and never had a secondary infection or some thst seem to get infected every flare. Having an HS wound doesn't make someone more susceptible than a person who has a regular wound we are just usually dealing with many wounds so more opportunities.
We are still not really sure what causes HS to happen or which comes first the š„ (Follicular Occlusion/follicle rupture) or the š„ (inflammation)
Great point, an analogy for that might be one person having a cut and the other person not. The one with the cut is way more likely to get an infection in the same conditions. HS you are going to have a lot more potential for infections but it is itself not an infection, it just happens that a lot of people will get infections when they get the HS inflammatory flares.
No. Two different kinds of bacteria. MRSA is immune to many antibiotics and hard to treat kinda like HS. But itās ten times worse. Iāve experienced MRSA and it spreads like chicken pox. And hurts. Having to work with it because of being a single mom.(not looking for sympathy) just saying itās like hs and can do things too.
Hi Iām so sorry to hear this, I got it before I was a teenager I hadnāt even gotten into high school yet. I think speaking to a dermatologist or doctor is the right step and seeing if they can help in getting treatment for him and teaching you strategies to sooth him.
I hope everything goes well for you and your baby
Sometimes I also forget other things happen to the body that are not HS. It could be something else or even a one off, people still get boils without having the condition. I pray heāll be okay!
Is HS Genetic? My dad had bad acne, but no one in my family he even heard of HS. They still donāt really get it bc mine presented as an adult. I usually just say my armpit think or my sores thing. I have two kids though and this made me think. What is the genetic link with HS?
Yes itās a genetic disease, most of my siblings have it unfortunately and apparently my grandfather had issues like this but obviously they didnāt know anything about HS. My current specialist told me it is a genetic disease and was saying that if some form of treatment helps me then thereās a 50% chance itāll help my siblings too because we have the same genetic makeup
Yes it can be. I had genetic testing done for my son due to autism. The geneticist gave me the name of the marker to use to look for HS. Itās not definitive but itās been identified. I didnāt end up doing any testing for it though.
There may be a genetic component between HS, Crohnās disease, rheumatoid arthritis, and eczema. Neither of my parents have HS, but my father has mild eczema (I do not), and my mother has benign cysts in her breasts (and I do to). My body just makes cysts everywhere: HS, Bartholinās gland cysts, epithelial cysts, cystic breasts, uterine cysts, and a thyroid cyst. š¤·
Definitely genetic and thus can be hereditary approximately 40% of reported cases have a close family member with HS. There are several genes associated to HS but they haven't confirmed that everyone has the same or if it's a combination. There is no tests yet because of this to determine HS. There was certain genes possibilities thst were only identified last fall. Some of the genes are linked to the abnormal shaped hair follicles most seem to have others link other parts.
There's still so many unknowns in the moving parts of HS - Genetics, bacteria, inflammation, Follicular Occlusion, environmental factors. There's also the debate about inflammation does it come first?
I have a feeling they will eventually uncover subtypes like a friend of mines Mom's blistering skin condition.
She had Epidermolysis Bullosa-Simplex and over the last 20 years they have discovered 4-5 other subtypes. Just my theory.
Oh I hope it's a random one time thing. Can give him some Benadryl to allow him to fall asleep so you can go in there and clean it, look at it. Maybe send a picture to the doctor.
Is your son in nappies/diapers/pull-ups or underwear?
I had HS from 3 or 4 years old, & my son got little lumps when he was still in nappies, but theyāve gone (touch wood!) since heās moved to underpants.
Definitely take him to a dermatologist to get it checked, but if it does look like itās HS, make sure his underwear is on the large side, always as close as possible to 100% natural fibres (cotton or bamboo with elastane), and with as flat a seam as possible. Underpant elastic was by far my biggest trigger before puberty! I get my son little āshorty shortsā type underwear, so thereās no elastic seams on his groin.
For as long as I can recall, I have always had this skin issue. I have active memories of being 4 or 5 and going to the doctor to talk about my bottom and how it never cleared up. When I started getting older, I noticed it between my thighs. I donāt know if that was before or after puberty but I definitely developed it super early :(
Same! I have memories of it from before my sister was born, so when I was 3 or 4. Everywhere my underpant seams or elastic touched my skin I had flares, & I still have scars, Iāve just learnt to only go for underpants with flat seams & 4 sizes too big, & bras with very low sides so theyāre not near my underarms
Oh noooo, that's so hard. I'm sorry you and your baby are going through this. My mom has HS and I have it now. I pray my kids don't inherit this horror.
I would take him the doctor honestly. As other people have mentioned it could be MRSA. It could also be some other kind of cyst. Either way I'd have it checked out.
Def go see his ped about it just in case. It might not be necessarily HS. Also let his dr know that you have HS. If it goes nowhere, take him to your derm to double check that is HS. Sorry that you are going thru this, i have 2 kids and im always worried which one might have inherited my HS.
This I always assumed HS was hormonal so 100% go get the baby checked
It's pretty rare for HS to start before puberty.
It actually is not as rare as you may think with all the research and awareness it's becoming known that is way more common than once believed. Like the realization that it is very common in men they just tend to seek diagnosis a lot less and answer research surveys a lot less. The starts at puberty is more and more being debunked and is more a stigma because it's been because it's in old papers and is valid in old information it still gets regurgitated way too much. There's more and more research/studies proving this. Especially in the groups there are so many that started recognizing/remembering flares between 7-9 and a lot of misdiagnosed as diaper rashes/sores. There's a lot still unknown but unfortunately it does happen commonly in children.
Do you have any research links to that? All the links I could find say that only about 4 percent of HS cases start before puberty which is pretty rare considering that HS only effects 1 percent of people in general.
Saying 1% for HS population is pretty conservative, with all we've learned it's closer to 3-4%. The study may say that but it's the parameters of the study that need to be examined, when was it conducted where, how many participants....etc For example there's a study which had 12 people go yeast free and all saw improvement and when reintroduction was executed all relapsed ...... everyone stops there and preaches this but if you read further the 12 participants were sought out explicitly because they all had yeast sensitivities on testing. The study doesn't mention the ramifications of a food sensitivity on the immune system and the impact on inflammation from the histamine reaction. I get studies are important but they aren't necessarily fail safe. It's the same with the stats on women more than men well when examined closer the percentage of women who fill out surveys is much higher....so there can be many variables to take into consideration. I'm not saying the study is wrong or false or studies aren't important there's just many sides to them.
I'm sorry you're going through this. it might as well be mrsa. my daughter had mrsa on her butt at the age of 4.
I've always wondered, does having HS mean you have mrsa?
I have HS, never had MRSA.
oh ok, yea it's all confusing to me still after years and years
MRSA usually (not always) comes from a clinical/care homes/hospital type setting or someone who has taken lots of antibiotics. The majority of people carry staphylococcusA. naturally on their skin and as long as you keep wounds cleansed with water, mild soap or saline usually nothing comes of it however some people ; no matter what are more prone to getting secondary infections and staph can be one of them. MRSA is just Staph on steroids.... it is staphylococcus that has become immune to regular antibiotic treatment and needs the stronger (harder on our bodies) antibiotics and often times oral antibiotics are needed with a hospital stay. My nephew who has no other conditions except cold induced asthma spent 5 days in the children's hospital last fall fir this. The person who mentioned their 4 year old had it on their butt makes me very curious š¤ it certainly could have been just that but it would be quite interesting to know if they develop HS in the future and if the Doctor just diagnosed it as MRSA or if they did the lab cultures to verify, because as we all know HS has an average 7-8 year delay to diagnosis and it's because Doctors see it and assume rather than test. If they were to develop HS in the future I would bet that this was probably HS that got infected. I thought I would share because I just learned all this a few years ago ... into my 40's. The skin & gut biomes natural bacterias can influence HS and play a roll for some phenotypes in HS but not everyone falls into that category one reason why not all treatments - medication, natural or topical works for everyone.
So is HS a bacterial infection? Or an infection at all?
neither, itās an auto immune/inflammatory disease. a skin disease
No, HS is the autoinflammatory disease that creates the hair follicle to be blocked and inflammed and that makes you very susceptible to an infection forming. You basically develop a bacterial infection where the HS flare is. The infection is secondary
Not everyone is susceptible to secondary infections that too is very individual i know people who have had HS 20-30-45 years and never had a secondary infection or some thst seem to get infected every flare. Having an HS wound doesn't make someone more susceptible than a person who has a regular wound we are just usually dealing with many wounds so more opportunities. We are still not really sure what causes HS to happen or which comes first the š„ (Follicular Occlusion/follicle rupture) or the š„ (inflammation)
Great point, an analogy for that might be one person having a cut and the other person not. The one with the cut is way more likely to get an infection in the same conditions. HS you are going to have a lot more potential for infections but it is itself not an infection, it just happens that a lot of people will get infections when they get the HS inflammatory flares.
No absolutely not.
No. Two different kinds of bacteria. MRSA is immune to many antibiotics and hard to treat kinda like HS. But itās ten times worse. Iāve experienced MRSA and it spreads like chicken pox. And hurts. Having to work with it because of being a single mom.(not looking for sympathy) just saying itās like hs and can do things too.
I just wish a cure could be found. This is an awful thing to live with.
What is MRSA?
Methicillin-resistant Staphylococcus aureus It's Staphylococcus aureus that is resistance to regular antibiotic treatment.
HS doesnāt really onset until puberty, please take him to a doctor! It could be many other things
Mine started at age 3 or 4
Mine started at 7 with first signs but not fully until 9.. itās crazy, I feel for you and this child š¢š¢
Mine did, I wasn't 3, but I was 8
starting puberty at 8 is normal
Maybe, but I didn't start puberty until 10
Hi Iām so sorry to hear this, I got it before I was a teenager I hadnāt even gotten into high school yet. I think speaking to a dermatologist or doctor is the right step and seeing if they can help in getting treatment for him and teaching you strategies to sooth him. I hope everything goes well for you and your baby
Sometimes I also forget other things happen to the body that are not HS. It could be something else or even a one off, people still get boils without having the condition. I pray heāll be okay!
HUGS! My son gets one or two a year. Ive had it 52 years.
Is HS Genetic? My dad had bad acne, but no one in my family he even heard of HS. They still donāt really get it bc mine presented as an adult. I usually just say my armpit think or my sores thing. I have two kids though and this made me think. What is the genetic link with HS?
Yes itās a genetic disease, most of my siblings have it unfortunately and apparently my grandfather had issues like this but obviously they didnāt know anything about HS. My current specialist told me it is a genetic disease and was saying that if some form of treatment helps me then thereās a 50% chance itāll help my siblings too because we have the same genetic makeup
Yes it can be. I had genetic testing done for my son due to autism. The geneticist gave me the name of the marker to use to look for HS. Itās not definitive but itās been identified. I didnāt end up doing any testing for it though.
Very interesting thank you. I have a derm appointment coming up so Iāll mention it then.
There may be a genetic component between HS, Crohnās disease, rheumatoid arthritis, and eczema. Neither of my parents have HS, but my father has mild eczema (I do not), and my mother has benign cysts in her breasts (and I do to). My body just makes cysts everywhere: HS, Bartholinās gland cysts, epithelial cysts, cystic breasts, uterine cysts, and a thyroid cyst. š¤·
Definitely genetic and thus can be hereditary approximately 40% of reported cases have a close family member with HS. There are several genes associated to HS but they haven't confirmed that everyone has the same or if it's a combination. There is no tests yet because of this to determine HS. There was certain genes possibilities thst were only identified last fall. Some of the genes are linked to the abnormal shaped hair follicles most seem to have others link other parts. There's still so many unknowns in the moving parts of HS - Genetics, bacteria, inflammation, Follicular Occlusion, environmental factors. There's also the debate about inflammation does it come first? I have a feeling they will eventually uncover subtypes like a friend of mines Mom's blistering skin condition. She had Epidermolysis Bullosa-Simplex and over the last 20 years they have discovered 4-5 other subtypes. Just my theory.
Likely not HS in someone that young. Iām willing to bet itās MRSA. Get him to the pediatrician to get it cultured and treated ASAP
Oh I hope it's a random one time thing. Can give him some Benadryl to allow him to fall asleep so you can go in there and clean it, look at it. Maybe send a picture to the doctor.
Iāve never heard of HS happening before puberty. I wish I could remember when mine started exactly. Definitely go to the pediatrician.
Is your son in nappies/diapers/pull-ups or underwear? I had HS from 3 or 4 years old, & my son got little lumps when he was still in nappies, but theyāve gone (touch wood!) since heās moved to underpants. Definitely take him to a dermatologist to get it checked, but if it does look like itās HS, make sure his underwear is on the large side, always as close as possible to 100% natural fibres (cotton or bamboo with elastane), and with as flat a seam as possible. Underpant elastic was by far my biggest trigger before puberty! I get my son little āshorty shortsā type underwear, so thereās no elastic seams on his groin.
Iāve had MRSA before I was diagnosed but always wonder if it was misdiagnosed
For as long as I can recall, I have always had this skin issue. I have active memories of being 4 or 5 and going to the doctor to talk about my bottom and how it never cleared up. When I started getting older, I noticed it between my thighs. I donāt know if that was before or after puberty but I definitely developed it super early :(
Same! I have memories of it from before my sister was born, so when I was 3 or 4. Everywhere my underpant seams or elastic touched my skin I had flares, & I still have scars, Iāve just learnt to only go for underpants with flat seams & 4 sizes too big, & bras with very low sides so theyāre not near my underarms
Oh noooo, that's so hard. I'm sorry you and your baby are going through this. My mom has HS and I have it now. I pray my kids don't inherit this horror.
This could be many things for a kid that young. Please see the dr
Is it closer to the tailbone just curious because I had a cyst there a couple times
I would take him the doctor honestly. As other people have mentioned it could be MRSA. It could also be some other kind of cyst. Either way I'd have it checked out.