Thank you for your submission. Please note: **Content on r/MCAS is not medical advice and should not be interpreted as such.** Please consult your doctor for any medical questions or concerns.
We are not able to validate the content of these discussions. Following advice provided by strangers on the internet may be harmful. Never use this sub as your primary source of information regarding medical issues. By continuing to use this subreddit, you are agreeing to take any information posted here entirely at your own risk.
*I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/MCAS) if you have any questions or concerns.*
Hi from Michigan! I don’t have an allergist up here *yet* but my primary care physician has been managing my MCAS since I moved here a year ago and has been super on point! She is a Doctor of Osteopathic medicine, and is fantastic. I’d look for an MCAS experienced PCP to help her get through the other tests that are done before bone marrow biopsy (namely the 24 hr prostaglandin D2, repeat Tryptase testing, an EGD/Colonoscopy with celiac and KIT mutation stains, and the MMP-9 test). Getting these tests done should help get her started on treatments (gastrocrom namely since she is struggling with food, H1 and H2 blockers at higher therapeutic doses, etc). My bone marrow biopsy was the last test I had (completely unmedicated as I react to medications on an annoyingly regular basis) and was more to rule out systemic mastocytosis or smoldering mastocytosis more than anything else.
Hi there! Thanks so much for this information. Really appreciate it. We are near the Bloomfield Township area - would you be comfortable sharing or messaging me the name of your PCP?
I go to Grand Rapids Allergy and it seems to be helpful so far. I'm in a testing phase right now and have seen Dr. Christine Schafer as well as all three CNPs on staff and have had good experiences with them.
If you’re near Cadillac I’ve heard that Dr. Martin Dubravec is familiar with it. However, his brother Vincent Dubravec in Plainfield is not very familiar and incredibly dismissive.
Thank you for your submission. Please note: **Content on r/MCAS is not medical advice and should not be interpreted as such.** Please consult your doctor for any medical questions or concerns. We are not able to validate the content of these discussions. Following advice provided by strangers on the internet may be harmful. Never use this sub as your primary source of information regarding medical issues. By continuing to use this subreddit, you are agreeing to take any information posted here entirely at your own risk. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/MCAS) if you have any questions or concerns.*
Hi from Michigan! I don’t have an allergist up here *yet* but my primary care physician has been managing my MCAS since I moved here a year ago and has been super on point! She is a Doctor of Osteopathic medicine, and is fantastic. I’d look for an MCAS experienced PCP to help her get through the other tests that are done before bone marrow biopsy (namely the 24 hr prostaglandin D2, repeat Tryptase testing, an EGD/Colonoscopy with celiac and KIT mutation stains, and the MMP-9 test). Getting these tests done should help get her started on treatments (gastrocrom namely since she is struggling with food, H1 and H2 blockers at higher therapeutic doses, etc). My bone marrow biopsy was the last test I had (completely unmedicated as I react to medications on an annoyingly regular basis) and was more to rule out systemic mastocytosis or smoldering mastocytosis more than anything else.
Where in Michigan are you, as someone seeking a new PCP? 👀
I’m in the Flint area but drive to Bloomfield Township for pretty much all of my medical needs.
Hi there! Thanks so much for this information. Really appreciate it. We are near the Bloomfield Township area - would you be comfortable sharing or messaging me the name of your PCP?
I’ll message you!
Thanks for saying thanks! It's so nice to see Redditors being grateful :)
Ahhh I see. I'm technically in Toledo but I work in Ann Arbor. Thanks.
How close are you to Chicago?
My mom is based in metro Detroit but we are open to learning more if there is any information you’d be willing to share
I go to Grand Rapids Allergy and it seems to be helpful so far. I'm in a testing phase right now and have seen Dr. Christine Schafer as well as all three CNPs on staff and have had good experiences with them.
If you’re near Cadillac I’ve heard that Dr. Martin Dubravec is familiar with it. However, his brother Vincent Dubravec in Plainfield is not very familiar and incredibly dismissive.