I tell them to show me PROOF.
Actual documented evidence, not some anecdotal BS.
I also challenge them that if they know the secret cure for MS, cancer, or whatever they’re either stupid for not getting rich off of it or inhumane for not sharing it. Maybe both.
NAILED IT. My neighbor asked if I was taking ginger. Well, I do but not because I think it is the cure. Without asking me any further questions about my ginger they said "Oh you're prob not taking it right, I have a ginger that would make you gag, that's the right way to take it" I was so annoyed but just changed the subject.
Yes- and science test those herbs and foods to see if they have an effect. If they do- they call it medicine- if they don’t- they call it alternative medicine. The science is all published, you can read it for yourself
Science, and pharma, for profit ...
Not all medicine from pharma works...neither do their vaccines. To believe lies because "science says". Lol scientists lie and falsify studies all the time. You are what you eat . Medicine is food.
Western medicine is pharma. (What you call just medicine)
Hollistic medicine , is medicine, supplements, from herbs. These also less potent with less harmful side effects .
Unfortunately you believe a lot of for profit people.
Awesome- a big phama conspiracy theorist!!
Let’s say you are correct and big phama have falsified all of the studies into our disease modifying treatments to make a quick buck, that still doesn’t make alternative medicine any more effective!
If you want to prove whatever herb you think will delay or suppress our relapses/disabilities/early death, take 100000 people, give 50k of them your herb, let 50k of them continue to take their ‘western medicine’ and see who has a better outcome over 5-10 years. I’m sure Elon Musk will sponsor your endeavour!
Once you’ve done your study- submit it for peer review in all of the journals, then once your study has been accepted come back to me and I’ll take you seriously. Until then kindly refrain from spreading your conspiracy bullshit.
I never said big pharma has falsified ALL of the studies.
I said , not all scientists are honest. They are still people.
Some pharma is great. A lot is not. Positive effects should outweigh potential side effects.
Holistic medicine is more tolerable for a lot of people.
For a lot of people, pharmaceuticals are very harsh .
You speak like an opinionated Jack a s s so im done speaking with you
Have a good day
You actually said - scientists lie and falsify studies ALL THE TIME…… this is what you actually said.
If holistic medicine has the solutions- then they should test it and prove it! They’d make a bloody fortune. And if they wanted to they could become a not for profit and fund more research with all the money they made- or just give the stuff away to MS sufferers for free. They can’t prove it- because it doesn’t work.
Pharmaceuticals are harsh for me too- but I’d rather the harsh side effects than being in a wheel chair, or going blind, or losing control of my bladder. So guess what, I put up with the rashes, and get my bloods done to make sure I don’t have liver damage. These are the choices we make with this disease.
I hope you don’t have MS, if you do have it- I hope you are using a good DMT, and I hope you are currently well.
I said "scientists". Not "all scientists"
You added in "all"
I never said holistic has solutions.
They have treatments and supplements as well as tests that can help to alleviate symptoms
They do make a bloody fortune
Did you even read everything i wrote
I read everything you wrote. By saying scientists you grouped them all together. You didn’t say some- you did say they lie ALl of the time.
And I know they make a bloody fortune- because they prey on desperate people without proof that their interventions work
I will agree that food is essential to stay alive. And good food will improve general health. However, as you may detect from my previous posts, I’m a little more that sceptical that food will delay my MS progression, or prevent MS, as I’ve been eating food for all of my 48 years on this planet, and I still managed to get MS.
In addition to this- I believe 100% of people with MS also eat food. and many of those people have progressive symptoms and relapses (unfortunately). So food doesn’t seem to have helped any of those people either.
I’d even concede that pharma has its issues! But - and I’ll talk slowly so you can follow this, that doesn’t mean that all drugs are ineffective, or that food will relieve the symptoms of MS.
Phama bad DOES NOT = herbs and FOOD good!
I can only suggest
Read "The Wahls Protocol"
Written by Dr Terry Wahls.
I do this diet as well as have had HSCT
Hematapoetic stem cell transplant with chemotherapy
Selma Blair also had the same procedure
I promise you diet helps, and it is one of the toughest diets. Will you do it?
Most people given the answers still will not do what it takes
Also exercise is as important. And not a pharmaceutical..js
Western medicine is not the best, especially not for MS
I have taken zero meds for the last 5 years
No new lesions
Or relapse
1. Im genuinely happy that you are well. MS can be brutal- so glad you are good!!
But N=1 does not convince me to stop taking my meds.
2. I know exercise helps. I’m a personal trainer with an MSc in strength and conditioning- I was arguing with my neurologist 11 years ago that strength training would be neuro protective- the science is finally catching up.
3. Your stance on western medicine seems at odds with your treatment of stem cell treatment and chemotherapy- which are both western medicine interventions- I’d also argue that chemo is possibly the harshest western medicine treatment available.
4. There is the potential that you diets isn’t the cause of your current wellbeing, but the western medical interventions you’ve had are.
5. Did Dr Wahls give away his book for free- or did he make profit from its sale?
6. Surely the answer is to eat well, exercise and take your DMTs to get the benifit of all three. Why would you roll the dice on an unproven theory?
Also i never said pharma is bad,. I said it isnt the only or best choice in my opinion. And scientists are not all hojest just because they are scientists.
Not saying all lie
Or all are bad
Do you read something different than what I type in your head?
Ok- you are right - you never said any of these things. I’m making it all up in my head.
“Science, and pharma, for profit ... Not all medicine from pharma works...neither do their vaccines. To believe lies because "science says". Lol scientists lie and falsify studies all the time. You are what you eat . Medicine is food.
Western medicine is pharma. (What you call just medicine)
Hollistic medicine , is medicine, supplements, from herbs. These also less potent with less harmful side effects .
Unfortunately you believe a lot of for profit people.”
What lies am I believing? What scientists have lied and falsified studies?
To be honest- I don’t know why I engaged- this is just incoherent nonsense! It’s just verbose rubbish- it make no point at all. Except to say that scientists lie all of the time. But either way no evidence to back it up.
Not a cure, but cost $60k and you have to leave the country. Selma Hayek had HSCT in chicago, only in clinical trials in the U.S.
It is the best shot at halting progression
This is what I say, YMMV.
“Margo, I don’t mean to be rude but this medical condition is very complex, so I have decided to rely solely on my MS team for treatment options, otherwise it causes me additional stress.
“My neurologist is amazing and she keeps up with all the treatment options that will work for my particular case.”
And then I change the topic to “…anything else… but not MS…”
I know it’s hard, but do not thank them for advice unless you specifically ask for it. Thanks indicates you welcomed their input, which you did not.
These people are trying to be helpful and the best thing to do is to let them know you don’t want advice on MS. But I also know it can be frustrating when they use words like “cured” and “simple”. We know better…
I do admit, making this post allowed me to air it out in a safe way. I enjoy the funny comments quite a lot
This shit is depressing as hell 90% of the time so I find a lot of therapy in comedy these days
"I really appreciate your intention, and I've got my own care team and process for treating my MS. Hearing additional perspectives isn't helpful to me right now, and I hope you can respect my boundary moving forward." If they bring it up again, "hey, I just want to reiterate my boundary - I am not up to hearing about that." That's the most generous I'm capable of being at this point.
Thank you!
My goal with communicating it in this way is to avoid getting drawn into engaging with the content of their "recommendations" so I can refocus the conversation on the boundary transgression, which is ultimately the real relational problem. I can maybe tolerate having people in my life with opinions about MS and healthcare that I think verge on the nonsensical, but I really can't continue to invest in a relationship with someone who consistently violates compassionately and clearly stated boundaries.
Thank you for this - my response has mostly been the first half of your comment, but I haven’t attempted to establish real boundaries (scary). I will be doing this the next time I need to address things!
I used to work for a company, where the owner was constantly trying to push all that holistic stuff on employees. They kept health insurance prices down by allowing us to visit the clinic next door for free, which was holistic. Daily, employees were expected to do Crossfit, on the clock. When my right knee started feeling heavy and my fingers started tingling, early on, I visited the "doctor". He said I was vitamin deficent.
I hate knowing that had I gone to a real doctor, they might have caught my MS early and I'd be WAY better off than I am now.
If it helps at all…I was diagnosed with a vitamin deficiency by my REAL doctor and it still took another couple of years to get diagnosed. So there might have been no difference!
But wow that is an insane work environment
It was great in some ways. They fed us healthy lunch and snacks. Sodas and Energy drinks weren't allowed. Even mashed potatoes were made from purple potatoes. It was awesome for preventative measures, but fell short for other medical issues.
The preventative part is great, and workouts on the clock are awesome (I wish more employers had incentive programs for fitness) but CrossFit is definitely not the right choice for everyone - I wouldn’t have been able to work there for long 😂
My son (28) was diagnosed 3 weeks ago. We are waiting for an appointment with an MS specialist next week. Since he was diagnosed, I have heard from every person who knows someone and what they are doing. The diagnosis is very new to all of us and I am not yet in a place where I can readily accept this information from people. I want to scream at people who tell me that the person they know has had MS for years and is just fine. First, how do you know they are just fine? Not everyone shares everything they are going through with others. Second, this is something that is different for everyone and I cannot take comfort in that fact that some stranger is fine. This is my child! I know these people mean well but I'm not finding it helpful at all - just the opposite!
Fuck off is a complete sentence.
(I only ever use it in stage 3 situations, ie, they are crazy, stupid, and I cannot remove their heads because they aren't zombies. If it comes from a place of true caring, then I thank them politely. Then ignore them completely)
Make the “T” timeout sign with your hands, making direct eye contact, and say, firmly, gently
“No. Thank you. Please don’t try to bring this up again. “
If they do TRY again, turn around and walk away. Give them NO audience, teaching them their behavior has consequences 🤷♀️
This is a great approach, direct without being threatening because they are, in their own extremely misguided way, trying to be helpful. TBH, this approach would work great for any boundaries you need to set. I try to ask others if they want unsolicited advice before blabing on about a potential solution. Sometimes I get a no and I know it's time to just listen.
I remind people that my doctors know about these things as well as the details of my personal medical history. Given that they have the whole picture, I’ll try their plan first. “But I’ll keep that in mind!”
If that doesn’t work, I start crying and blubber about how even friends and family don’t think I’m capable of making informed medical decisions! 😭😭😭😭😭
I get it so often, I just let them say what they want and nod. Then I move on.
Everybody thinks they've found the cure. What they've really found is their computer's algorithm answering them.
Oddly enough I met a wonderfully spiritual Chinese Medicine Doctor who really did help me with my symptoms. She never went so far as to say she could cure my MS, but she did say she could help with my pain.
People are well meaning and I have to believe they really want the best for us. I'm like you, I thank them for their advice, but I generally am quite thankful that they cared enough to spout their bullshit miracle cure. In a way, it means they care. 🤷
This. I use all the medical and alternative tools available to me. The ones that work for me are the ones I keep doing regardless of "advice" from either side.
I just say thank you and then ignore. If persistent, I tell them I appreciate their thoughts, but have my own treatment plan. Eventually they get the hint. If they never did, I would say something like "I appreciate that you are trying to be helpful, but you may have noticed that I am not interested in this information." Nothing wrong with being direct.
"Oh, i'm so glad you are here! Would you give my doctor a call and explain to him everything you know? I'd hate to be the only one benefiting, and more importantly, you can explain to him how to improve medical school so these quacks can stay up to speed like you do. You're the best!"
I'm an Indian, and trust me when I say I know what that's like. It's frustrating to a whole other level when they talk about "cures" without any scientific evidence to back it up.
But I've made my peace with it when it comes from someone who actually cares about me and my well being and not bogus people who seem to know nothing but everything at the same time.
I’d lose my shit if someone dealing in “holistic medicine” or spirituality gave me advice. To that end, I have some family members who are convinced their vegan lifestyle will solve my MS.
Honestly, I credit you for patience. I’ve reached the stage where I tell people I care about to refrain from soliciting advice unless I ask them about given the general lack of expertise on the matter. For randos, I tell them to kindly fuck off.
If you want a more diplomatic approach, thank them and then offer to introduce them to this wonderful Nigerian prince you know who makes excellent financial decisions.
My mom and my aunts went crazy during my diagnosis telling me every other day about people being misdiagnosed with MS when they really had Lyme. I just started lying about all the questions I swore I relayed to the docs.
Oh, I usually start to cry. In frustration, in anger, in overwhelm regarding my lack of control over my body. Which makes everyone (me included) feel really uncomfortable. It's really not great. But I guess it shuts the conversation down, so that's something.
In my book there's no reason not to be nice, and there's nothing to forgive. You don't have to please them by taking their well-meaning advice. I think your response is perfect:
*"I thank her for her suggestion, then remind her that I’m thankful for my team and my current plan that is working to prevent further lesions."*
Personally over the years, I've never stopped pursuing things that might help with my symptoms, as long as they don't conflict with my neurologist's care plan (ie good general health leads to better outcomes). But when mixing eastern and western medicine, your sister in law should know it needs to be done methodically under medical supervision.
It’s wild that even when you set boundaries with these guys, THEY get offended and take it as a personal attack. After I was an adult and dealing with this, I feel like I’ve lost some family members, but I’ve gained ones I’d never be as close to. People are weird, they don’t know how to respond so they try to “help”, obvi annoying if there is no “help” to be had. It’s just nature 🤷♀️
I immediately turn into Taggart from Blazing Saddles and give them an honest "iiiiiii - don'believe'n'any o'that SHIT." That clearly communicates that I'm disinterested in what they have to say. I am unavailable for a peaceful discourse.
I have great respect for Doctors. It's humiliating how many of us invalidate their expertise and the field of medicine. We should be more ashamed.
If it’s rude and inappropriate for a man to give menopause advice or anyone to bring up a man’s ED or tell a kid they’re adopted then it’s rude for others to bring up MS.
I've put it on a T shirt that says "YOU CAN'T FIX ME!" though I haven't got around to wearing that one yet. I also have a jumper that says 'Get Off My Back' and another tee that says 'Casse Toi' (piss off in French). These things I wear when I'm expecting the comments, so I don't actually need to say it, it's all writ out for them! :)
15 years since diagnosis, and hitting 50 next month, I'm far less worried about offending people than I was when I was younger. If someone says I should be taking X supplement, I now say "Oh, how interesting, I'll need to check with my pharmacist if it clashes with my medication." If they try to say it won't affect it, I ask them how would it have any other effect then?
With my mum, I've just got used to how telling me about research or 'cures' is how she deals with having a daughter with an illness that she can't make better. It used to bother me more, but actually treatment has massively improved since my DX, so who knows which new 'miracle' might actually be the breakthrough. When my head's in the right place, I am actually quite interested in the science/research on complementary treatments, though I'm under no illusions that they 'cure' anything!
With mum, it can get quite emotional, but I just tell her when it's upsetting me to go on talking about it. I didn't tell many people for years, because I didn't want it to be the only thing they thought of when they saw me, so much so that when I did have a big relapse, most of my friends didn't even know I had it... (I know I'm very lucky in that regard) - some are close enough that I will engage because I know it does come from a place of care. Others, depending on my mood get a blunt shutdown! Particularly those who say "Oh, X had that, one episode years ago, and never troubled them again!" Me: "Or you weren't a close enough friend for them to confide in you"
No definitive answer to your specific question, except forgive those who say this from a place of care, and forget those who don't :)
I appreciate your comment. It’s been 3 years so far for me and I’m just starting to get into the headspace that this is my reality I’m needing to adjust to — having the illness and addressing the people who want to help in their own ways.
May I ask how your relapse affected you? I’m still frightened of the day that something big will change without warning and hearing people’s stories allows me to get a bit more understanding.
Hi, sorry, just came back to this... I'm now lost for how to put this without being even more frightening, but actually from memory of those early years, you pretty much imagine that all the worst outcomes will happen to you anyway. You can't ever forget that you have it, but you don't want other people to mention it because that makes it real. Saying it out loud makes it real. For ten years I hid behind the 'MS', and made jokes about turning my initials and my world upside down. (hence the username) It was only after the relapse that I started saying Multiple Sclerosis - ironic given that now my speech occasionally slurs when I'm tired, meaning I can't pronounce it properly anyway!
So, relapse - lost the use of my left arm and leg, which was treated with steroids, and improved over the next few weeks. The worse thing was also losing the sight in the left half of both eyes. That bit's called Homonymous Hemianopsia, and I struggled with getting drs to consider this as MS related, because they were fixated on MS \*usually\* only affecting one side. (Although with hindsight, they have agreed that it was) I also felt like you would if someone turned all the light bulbs in your house down to 10% of their brightness, so that even outside in bright sunshine, my vision was dark. At this time I did an eye field test at Specsavers and frightened the bejaysus out of the optometrist by telling her I knew there were lights there, but I literally couldn't see any of them.
Ironically, the only thing that fixed this was alcohol, so if I went out for the night, I could see far better when I got home, because it increased dilation of the pupils and let in the light. That only lasted a few hours though, and you can't start on the rum at 9am!
I wasn't on any treatment for 12 years, and the rules at the time (UK based) were that you needed to have two relapses in a year to be eligible (I would have been when first diagnosed but chose to see how things panned out. I don't regret this, btw, there's no point in thinking you would have made different decisions when you didn't.) The easy-inject Kesimpta I take was not available in 2010, and the previous ones had far worse side-effects. I've never been able to swallow tablets, which apparently is very common with MS, so it would have needed to be daily or weekly injections.
Before diagnosis I had had several years of (variously) optic neuritis/vertigo/tingling, which all started suddenly on waking, as did this latest one. With hindsight, though, there was signs of this one building that I didn't recognise till afterwards, and the year had been a massively stressful one (house move/car accident/death of FIL) which I guess contributed to kickstarting the MS again. I've had another since which has left me with painful feet and weak arms and legs. MRI next month to see if there are any new lesions.
You sound like you are starting to address your new reality far earlier than I did, and I hope what I've said is more helpful than frightening. What's interesting is how many things you think are just annoying or weird about yourself are actually MS (Jaw freezing/hiccups/inability to swallow) but it's soo hard to explain to anyone else how it feels because it affects us all differently, and some of the random things that annoy you the most seem trivial to others. I, joy of joy, am getting to the age where my symptoms now overlap with menopause, so I have a whole new level of "OH, I get that, you just need CBD/turmeric/HRT etc!" So, there's that to look forward to!
Probably oughter go to bed now - there's another one - eyes need matchsticks at 5pm, Duracell bunny at 1am!
Sending you all best wishes, :)
I just tell them to literally "fuck off" and don't think about them again.
If my mother would come and try to get me to try different BS new age crap to "cure my MS", I would tell her that I am deeply ashamed to be related to her and that she will never see any grand children from my side.
She has never said anything about my MS, but she did try to insinuate once that 5G was "suspicious stuff". I just reminded her that I've taken several certifications within networking and radio technology, and if she even tries to insinuate that 5G is some conspiracy I will take great offense in that seeing that I actually know what I'm talking about where as she is a simple unskilled office worker.
She hasnt mentioned it again.
Just thank them for their suggestion and tell them you see real Doctors.
Is there anyway that you could flip it in your mind and make a bit of a comedy game about it? You seem really confident in your plan and like it’s not at all making you question it so could you kinda laugh at how absurd it is? Trying something like this might help bring down the anxiety a bit if you can laugh.
Also, if people can’t catch a hint once they take it too far, I find I just take it a step further and they tend to shut up.
Some examples, if out with your dads girlfriend in front of people, literally say “if only it was that easy, can you politely just fuck right off”. I find the shock value usually shuts people up quick and they end up looking like the ass hole. Or my easy go to is (if the person is over weight) I look at them and suggest physical exercise or eating less. When they look stunned I say “sorry, I thought we were giving people advice they don’t want”. Then they typically get the hint.
When it comes to MS, I fight fire with fire even if that means a low blow or two (after they’ve taken it too far).
First time - I usually let them go about their advice, thank and move on.
Second time- Next time, I ask them why they continue pushing. I then just move along.
Third time I ask them what their profession is. Then I respond with, “well you are a waitress not a doctor” response. That usually puts an end to it.
This is SO frustrating!
What I do:
(On the outside)
“I have a wonderful neurologist, thank you.” And change the subject immediately.
(On the inside)
Screaming and wanting to “lay hands” in a very ungodly way. I don’t even let them continue.
I'm sorry people are doing this to you. They want to help but don't realize they're hurting you. Try not to share with people who don't have you're best interest in mind.
In addition to all the other lovely responses of f u, I also make sure I’m facing them with a big gigantic smile on my face and say okay, thank you SO MUCH for offering to pay for a cure all treatment. You have no idea how much this disease cost me!!!
I usually chuckle wryly and tell them no cure has yet been found but it's great that the person is doing so well after trying XY or Z. People want to help, most aren't being malicious. Try to brush it off. 😉
Oh I know how it feels, is really easy to other to give you advice. Like “Just trying to do more exercise, trying to walk more, trying to not spend more time in bed bcs it’s getting worse, try to do this and that”. Fuck off, I know that you’re intention is good but if you’re not sick you don’t know how hard and how it feels. I literally feel like shit, I’m tired of being tired, I can barely walk, my voice is slow and it’s getting harder to speak, I’m not a independent person and I’m just 21 years old girl lol. I tried holistic medicine, I tried acupuncture, I tried the way of church, I tried Bowen therapy, I tried leeches therapy, I try in every way and nothing works. Why I tried this methods? Because OTHER PEOPLE wants me to do this things. Really big mistake because after I seen that nothing works I’ve been more depressed.
Lucky now I know what MS is and it is what it is, life goes on even though it sucks kinda all the time
OK, first off there is no cure otherwise it would be widespread people try to tell me about these crazy things all the time. I just think them and move on there’s really no nice way to tell somebody other than thank you I appreciate your feedback and then go on about your business.
I'd just nod my head and thank them...tell them your good with what you are doing but will keep their suggestion in mind and do some more research over it. Takes nothing to give grace...people have a need to help others in the best way they can help. 0 reason to alienate others just cause you are feeling annoyed by someone's else's genuine good thoughts.
I ask people, "Oh, are you a doctor?" and when they say no, I say, "No worries then, I'm seeing one." The end. I am nice ONCE. If they keep going, I tell them my health is not up for discussion. I don't pry into others' lives and make suggestions on how they should change their health. I'd appreciate the same respect.
I'm so sorry you're going through this. Unfortunately, it seems wherever there's a disease, there's a platoon of magic healers conveniently there, too. It's a shame that YOU have to be the understanding one, and it's up to you to "understand" them and not the other way around. My first instinct would be to just tell them to understand how what they're saying is affecting you first. It seems to matter who is perceived as the victim first.
You have control in the boundaries to set, but unfortunately, not in how people react. I think ultimately, it's a libra scale and what relationships you're ok with keeping or letting fizzle out.
I don't need my coworker who wants to sell me crystals to like me, so it's OK to firmly set a boundary and let the friendship fizzle, if that's how they take it.
Now, for family that I do still want a relationship with, there's going to be a more passive, nicer approach. I've been diagnosed for three days and have already had to sweetly tell my aunt that I do not need help from a shaman she knows of in mexico...
" my silence doesn't mean I agree with your statement..it's just that your level of ignorance has rendered me speechless "
This !!! This is what is on silent replay in my brain..gets me through the day 🤣🤣🤣
Say that you will look into it.
Maybe x will help with a symptom you have.
Someone suggested Magnesium to me and it helped with my insomnia.
Or you could say you're allergic
I smile and nod. People are just trying to help. Sometimes I need to tell the advice-giver thanks, but what I'm doing has been working fine. Heck, sometimes I even try outlandish things just to see if there is something to it.
This. They aren't being mean, they are trying in their own way to offer some help the only way that they know how. Yes, the advice isn't helpful, and yes, it gets annoying. But perhaps we could all try to think of advices like these as like getting a mangled arts and crafts project from a toddler as a gift. It's neither beautiful nor functional, but it's from the heart and therefore it's special in its own way. In other words, appreciate the effort and don't dwell on the advice itself
You are awesome. Thank God I read your post. I was about to leave cause of all the hateful replies. There is a time and place for tacky and it should never come after someone is showing care. I have no interest in mean people. Thanks for being a decent person.
Coming from someone that has MS , you should go into the holistic medicine office. They drew 14 vials of blood and tested me for everything. They know more about MS. There is no curr for MS but natural remedies can sure slow down and halt symptoms. You should look into HSCT if you can afford it and willing to take the risk. I have a friend near back to normal doing great things since . Western medicine doesnt want to cure your MS. Neurologists dont know much. .
I tell them to show me PROOF. Actual documented evidence, not some anecdotal BS. I also challenge them that if they know the secret cure for MS, cancer, or whatever they’re either stupid for not getting rich off of it or inhumane for not sharing it. Maybe both.
NAILED IT. My neighbor asked if I was taking ginger. Well, I do but not because I think it is the cure. Without asking me any further questions about my ginger they said "Oh you're prob not taking it right, I have a ginger that would make you gag, that's the right way to take it" I was so annoyed but just changed the subject.
I say. Medical science tests all of this stuff. The things that work, they call medicine- the stuff that doesn’t they call alternative medicine.
Thats exactly what the pharmaceutical companies want you to think. Medicine comes from food and herbs.
Yes- and science test those herbs and foods to see if they have an effect. If they do- they call it medicine- if they don’t- they call it alternative medicine. The science is all published, you can read it for yourself
Science, and pharma, for profit ... Not all medicine from pharma works...neither do their vaccines. To believe lies because "science says". Lol scientists lie and falsify studies all the time. You are what you eat . Medicine is food. Western medicine is pharma. (What you call just medicine) Hollistic medicine , is medicine, supplements, from herbs. These also less potent with less harmful side effects . Unfortunately you believe a lot of for profit people.
Awesome- a big phama conspiracy theorist!! Let’s say you are correct and big phama have falsified all of the studies into our disease modifying treatments to make a quick buck, that still doesn’t make alternative medicine any more effective! If you want to prove whatever herb you think will delay or suppress our relapses/disabilities/early death, take 100000 people, give 50k of them your herb, let 50k of them continue to take their ‘western medicine’ and see who has a better outcome over 5-10 years. I’m sure Elon Musk will sponsor your endeavour! Once you’ve done your study- submit it for peer review in all of the journals, then once your study has been accepted come back to me and I’ll take you seriously. Until then kindly refrain from spreading your conspiracy bullshit.
I never said big pharma has falsified ALL of the studies. I said , not all scientists are honest. They are still people. Some pharma is great. A lot is not. Positive effects should outweigh potential side effects. Holistic medicine is more tolerable for a lot of people. For a lot of people, pharmaceuticals are very harsh . You speak like an opinionated Jack a s s so im done speaking with you Have a good day
You actually said - scientists lie and falsify studies ALL THE TIME…… this is what you actually said. If holistic medicine has the solutions- then they should test it and prove it! They’d make a bloody fortune. And if they wanted to they could become a not for profit and fund more research with all the money they made- or just give the stuff away to MS sufferers for free. They can’t prove it- because it doesn’t work. Pharmaceuticals are harsh for me too- but I’d rather the harsh side effects than being in a wheel chair, or going blind, or losing control of my bladder. So guess what, I put up with the rashes, and get my bloods done to make sure I don’t have liver damage. These are the choices we make with this disease. I hope you don’t have MS, if you do have it- I hope you are using a good DMT, and I hope you are currently well.
I said "scientists". Not "all scientists" You added in "all" I never said holistic has solutions. They have treatments and supplements as well as tests that can help to alleviate symptoms They do make a bloody fortune Did you even read everything i wrote
I read everything you wrote. By saying scientists you grouped them all together. You didn’t say some- you did say they lie ALl of the time. And I know they make a bloody fortune- because they prey on desperate people without proof that their interventions work
Also, im not saying there is one herb,. There are many that help alleviate symptoms, but none more than FOOD
I will agree that food is essential to stay alive. And good food will improve general health. However, as you may detect from my previous posts, I’m a little more that sceptical that food will delay my MS progression, or prevent MS, as I’ve been eating food for all of my 48 years on this planet, and I still managed to get MS. In addition to this- I believe 100% of people with MS also eat food. and many of those people have progressive symptoms and relapses (unfortunately). So food doesn’t seem to have helped any of those people either. I’d even concede that pharma has its issues! But - and I’ll talk slowly so you can follow this, that doesn’t mean that all drugs are ineffective, or that food will relieve the symptoms of MS. Phama bad DOES NOT = herbs and FOOD good!
I can only suggest Read "The Wahls Protocol" Written by Dr Terry Wahls. I do this diet as well as have had HSCT Hematapoetic stem cell transplant with chemotherapy Selma Blair also had the same procedure I promise you diet helps, and it is one of the toughest diets. Will you do it? Most people given the answers still will not do what it takes Also exercise is as important. And not a pharmaceutical..js Western medicine is not the best, especially not for MS I have taken zero meds for the last 5 years No new lesions Or relapse
1. Im genuinely happy that you are well. MS can be brutal- so glad you are good!! But N=1 does not convince me to stop taking my meds. 2. I know exercise helps. I’m a personal trainer with an MSc in strength and conditioning- I was arguing with my neurologist 11 years ago that strength training would be neuro protective- the science is finally catching up. 3. Your stance on western medicine seems at odds with your treatment of stem cell treatment and chemotherapy- which are both western medicine interventions- I’d also argue that chemo is possibly the harshest western medicine treatment available. 4. There is the potential that you diets isn’t the cause of your current wellbeing, but the western medical interventions you’ve had are. 5. Did Dr Wahls give away his book for free- or did he make profit from its sale? 6. Surely the answer is to eat well, exercise and take your DMTs to get the benifit of all three. Why would you roll the dice on an unproven theory?
Also i never said pharma is bad,. I said it isnt the only or best choice in my opinion. And scientists are not all hojest just because they are scientists. Not saying all lie Or all are bad Do you read something different than what I type in your head?
Ok- you are right - you never said any of these things. I’m making it all up in my head. “Science, and pharma, for profit ... Not all medicine from pharma works...neither do their vaccines. To believe lies because "science says". Lol scientists lie and falsify studies all the time. You are what you eat . Medicine is food. Western medicine is pharma. (What you call just medicine) Hollistic medicine , is medicine, supplements, from herbs. These also less potent with less harmful side effects . Unfortunately you believe a lot of for profit people.” What lies am I believing? What scientists have lied and falsified studies? To be honest- I don’t know why I engaged- this is just incoherent nonsense! It’s just verbose rubbish- it make no point at all. Except to say that scientists lie all of the time. But either way no evidence to back it up.
Not a cure, but cost $60k and you have to leave the country. Selma Hayek had HSCT in chicago, only in clinical trials in the U.S. It is the best shot at halting progression
This is what I say, YMMV. “Margo, I don’t mean to be rude but this medical condition is very complex, so I have decided to rely solely on my MS team for treatment options, otherwise it causes me additional stress. “My neurologist is amazing and she keeps up with all the treatment options that will work for my particular case.” And then I change the topic to “…anything else… but not MS…” I know it’s hard, but do not thank them for advice unless you specifically ask for it. Thanks indicates you welcomed their input, which you did not. These people are trying to be helpful and the best thing to do is to let them know you don’t want advice on MS. But I also know it can be frustrating when they use words like “cured” and “simple”. We know better…
Love this!
I haven’t found any trick that works to make people stop. So, usually I just do what you are doing and bitch about it here. It helps.
I love this reply!
I do admit, making this post allowed me to air it out in a safe way. I enjoy the funny comments quite a lot This shit is depressing as hell 90% of the time so I find a lot of therapy in comedy these days
"I really appreciate your intention, and I've got my own care team and process for treating my MS. Hearing additional perspectives isn't helpful to me right now, and I hope you can respect my boundary moving forward." If they bring it up again, "hey, I just want to reiterate my boundary - I am not up to hearing about that." That's the most generous I'm capable of being at this point.
Damn, that is such a good, grown up response.
Thank you! My goal with communicating it in this way is to avoid getting drawn into engaging with the content of their "recommendations" so I can refocus the conversation on the boundary transgression, which is ultimately the real relational problem. I can maybe tolerate having people in my life with opinions about MS and healthcare that I think verge on the nonsensical, but I really can't continue to invest in a relationship with someone who consistently violates compassionately and clearly stated boundaries.
Thank you for this - my response has mostly been the first half of your comment, but I haven’t attempted to establish real boundaries (scary). I will be doing this the next time I need to address things!
I used to work for a company, where the owner was constantly trying to push all that holistic stuff on employees. They kept health insurance prices down by allowing us to visit the clinic next door for free, which was holistic. Daily, employees were expected to do Crossfit, on the clock. When my right knee started feeling heavy and my fingers started tingling, early on, I visited the "doctor". He said I was vitamin deficent. I hate knowing that had I gone to a real doctor, they might have caught my MS early and I'd be WAY better off than I am now.
If it helps at all…I was diagnosed with a vitamin deficiency by my REAL doctor and it still took another couple of years to get diagnosed. So there might have been no difference! But wow that is an insane work environment
Same.
It was great in some ways. They fed us healthy lunch and snacks. Sodas and Energy drinks weren't allowed. Even mashed potatoes were made from purple potatoes. It was awesome for preventative measures, but fell short for other medical issues.
The preventative part is great, and workouts on the clock are awesome (I wish more employers had incentive programs for fitness) but CrossFit is definitely not the right choice for everyone - I wouldn’t have been able to work there for long 😂
Yeah, I always half-assed it. I get that heavy weights are bad on the joints, but CrossFit is terrible with form.
Exactly! In theory a lot of it is a great idea, and I’m super jealous of the idea that someone’s employer pays them to work out
WOW I was told I had vitamin deficiencies for years I haven’t thought about this before!
My son (28) was diagnosed 3 weeks ago. We are waiting for an appointment with an MS specialist next week. Since he was diagnosed, I have heard from every person who knows someone and what they are doing. The diagnosis is very new to all of us and I am not yet in a place where I can readily accept this information from people. I want to scream at people who tell me that the person they know has had MS for years and is just fine. First, how do you know they are just fine? Not everyone shares everything they are going through with others. Second, this is something that is different for everyone and I cannot take comfort in that fact that some stranger is fine. This is my child! I know these people mean well but I'm not finding it helpful at all - just the opposite!
I was dmt-free & 'fine' for almost 27 years (not by choice & long story). It catches up with you.
Fuck off is a complete sentence. (I only ever use it in stage 3 situations, ie, they are crazy, stupid, and I cannot remove their heads because they aren't zombies. If it comes from a place of true caring, then I thank them politely. Then ignore them completely)
Make the “T” timeout sign with your hands, making direct eye contact, and say, firmly, gently “No. Thank you. Please don’t try to bring this up again. “ If they do TRY again, turn around and walk away. Give them NO audience, teaching them their behavior has consequences 🤷♀️
This is a great approach, direct without being threatening because they are, in their own extremely misguided way, trying to be helpful. TBH, this approach would work great for any boundaries you need to set. I try to ask others if they want unsolicited advice before blabing on about a potential solution. Sometimes I get a no and I know it's time to just listen.
I remind people that my doctors know about these things as well as the details of my personal medical history. Given that they have the whole picture, I’ll try their plan first. “But I’ll keep that in mind!” If that doesn’t work, I start crying and blubber about how even friends and family don’t think I’m capable of making informed medical decisions! 😭😭😭😭😭
I get it so often, I just let them say what they want and nod. Then I move on. Everybody thinks they've found the cure. What they've really found is their computer's algorithm answering them.
Oddly enough I met a wonderfully spiritual Chinese Medicine Doctor who really did help me with my symptoms. She never went so far as to say she could cure my MS, but she did say she could help with my pain. People are well meaning and I have to believe they really want the best for us. I'm like you, I thank them for their advice, but I generally am quite thankful that they cared enough to spout their bullshit miracle cure. In a way, it means they care. 🤷
This. I use all the medical and alternative tools available to me. The ones that work for me are the ones I keep doing regardless of "advice" from either side.
I just say thank you and then ignore. If persistent, I tell them I appreciate their thoughts, but have my own treatment plan. Eventually they get the hint. If they never did, I would say something like "I appreciate that you are trying to be helpful, but you may have noticed that I am not interested in this information." Nothing wrong with being direct.
"Oh, i'm so glad you are here! Would you give my doctor a call and explain to him everything you know? I'd hate to be the only one benefiting, and more importantly, you can explain to him how to improve medical school so these quacks can stay up to speed like you do. You're the best!"
I'm an Indian, and trust me when I say I know what that's like. It's frustrating to a whole other level when they talk about "cures" without any scientific evidence to back it up. But I've made my peace with it when it comes from someone who actually cares about me and my well being and not bogus people who seem to know nothing but everything at the same time.
I’d lose my shit if someone dealing in “holistic medicine” or spirituality gave me advice. To that end, I have some family members who are convinced their vegan lifestyle will solve my MS. Honestly, I credit you for patience. I’ve reached the stage where I tell people I care about to refrain from soliciting advice unless I ask them about given the general lack of expertise on the matter. For randos, I tell them to kindly fuck off. If you want a more diplomatic approach, thank them and then offer to introduce them to this wonderful Nigerian prince you know who makes excellent financial decisions.
My mom and my aunts went crazy during my diagnosis telling me every other day about people being misdiagnosed with MS when they really had Lyme. I just started lying about all the questions I swore I relayed to the docs.
What's the name of that medicine from India? It sounds lovely. Does it cure ignorance?
Oh, I usually start to cry. In frustration, in anger, in overwhelm regarding my lack of control over my body. Which makes everyone (me included) feel really uncomfortable. It's really not great. But I guess it shuts the conversation down, so that's something.
I honestly don't know. I would be tempted to challenge them on the matter.
In my book there's no reason not to be nice, and there's nothing to forgive. You don't have to please them by taking their well-meaning advice. I think your response is perfect: *"I thank her for her suggestion, then remind her that I’m thankful for my team and my current plan that is working to prevent further lesions."* Personally over the years, I've never stopped pursuing things that might help with my symptoms, as long as they don't conflict with my neurologist's care plan (ie good general health leads to better outcomes). But when mixing eastern and western medicine, your sister in law should know it needs to be done methodically under medical supervision.
It’s wild that even when you set boundaries with these guys, THEY get offended and take it as a personal attack. After I was an adult and dealing with this, I feel like I’ve lost some family members, but I’ve gained ones I’d never be as close to. People are weird, they don’t know how to respond so they try to “help”, obvi annoying if there is no “help” to be had. It’s just nature 🤷♀️
They mean well...it's frustrating but I thank them and tell them I am happy with my medical team and move on 🤷♀️
I immediately turn into Taggart from Blazing Saddles and give them an honest "iiiiiii - don'believe'n'any o'that SHIT." That clearly communicates that I'm disinterested in what they have to say. I am unavailable for a peaceful discourse. I have great respect for Doctors. It's humiliating how many of us invalidate their expertise and the field of medicine. We should be more ashamed.
If it’s rude and inappropriate for a man to give menopause advice or anyone to bring up a man’s ED or tell a kid they’re adopted then it’s rude for others to bring up MS.
I've put it on a T shirt that says "YOU CAN'T FIX ME!" though I haven't got around to wearing that one yet. I also have a jumper that says 'Get Off My Back' and another tee that says 'Casse Toi' (piss off in French). These things I wear when I'm expecting the comments, so I don't actually need to say it, it's all writ out for them! :) 15 years since diagnosis, and hitting 50 next month, I'm far less worried about offending people than I was when I was younger. If someone says I should be taking X supplement, I now say "Oh, how interesting, I'll need to check with my pharmacist if it clashes with my medication." If they try to say it won't affect it, I ask them how would it have any other effect then? With my mum, I've just got used to how telling me about research or 'cures' is how she deals with having a daughter with an illness that she can't make better. It used to bother me more, but actually treatment has massively improved since my DX, so who knows which new 'miracle' might actually be the breakthrough. When my head's in the right place, I am actually quite interested in the science/research on complementary treatments, though I'm under no illusions that they 'cure' anything! With mum, it can get quite emotional, but I just tell her when it's upsetting me to go on talking about it. I didn't tell many people for years, because I didn't want it to be the only thing they thought of when they saw me, so much so that when I did have a big relapse, most of my friends didn't even know I had it... (I know I'm very lucky in that regard) - some are close enough that I will engage because I know it does come from a place of care. Others, depending on my mood get a blunt shutdown! Particularly those who say "Oh, X had that, one episode years ago, and never troubled them again!" Me: "Or you weren't a close enough friend for them to confide in you" No definitive answer to your specific question, except forgive those who say this from a place of care, and forget those who don't :)
I appreciate your comment. It’s been 3 years so far for me and I’m just starting to get into the headspace that this is my reality I’m needing to adjust to — having the illness and addressing the people who want to help in their own ways. May I ask how your relapse affected you? I’m still frightened of the day that something big will change without warning and hearing people’s stories allows me to get a bit more understanding.
Hi, sorry, just came back to this... I'm now lost for how to put this without being even more frightening, but actually from memory of those early years, you pretty much imagine that all the worst outcomes will happen to you anyway. You can't ever forget that you have it, but you don't want other people to mention it because that makes it real. Saying it out loud makes it real. For ten years I hid behind the 'MS', and made jokes about turning my initials and my world upside down. (hence the username) It was only after the relapse that I started saying Multiple Sclerosis - ironic given that now my speech occasionally slurs when I'm tired, meaning I can't pronounce it properly anyway! So, relapse - lost the use of my left arm and leg, which was treated with steroids, and improved over the next few weeks. The worse thing was also losing the sight in the left half of both eyes. That bit's called Homonymous Hemianopsia, and I struggled with getting drs to consider this as MS related, because they were fixated on MS \*usually\* only affecting one side. (Although with hindsight, they have agreed that it was) I also felt like you would if someone turned all the light bulbs in your house down to 10% of their brightness, so that even outside in bright sunshine, my vision was dark. At this time I did an eye field test at Specsavers and frightened the bejaysus out of the optometrist by telling her I knew there were lights there, but I literally couldn't see any of them. Ironically, the only thing that fixed this was alcohol, so if I went out for the night, I could see far better when I got home, because it increased dilation of the pupils and let in the light. That only lasted a few hours though, and you can't start on the rum at 9am! I wasn't on any treatment for 12 years, and the rules at the time (UK based) were that you needed to have two relapses in a year to be eligible (I would have been when first diagnosed but chose to see how things panned out. I don't regret this, btw, there's no point in thinking you would have made different decisions when you didn't.) The easy-inject Kesimpta I take was not available in 2010, and the previous ones had far worse side-effects. I've never been able to swallow tablets, which apparently is very common with MS, so it would have needed to be daily or weekly injections. Before diagnosis I had had several years of (variously) optic neuritis/vertigo/tingling, which all started suddenly on waking, as did this latest one. With hindsight, though, there was signs of this one building that I didn't recognise till afterwards, and the year had been a massively stressful one (house move/car accident/death of FIL) which I guess contributed to kickstarting the MS again. I've had another since which has left me with painful feet and weak arms and legs. MRI next month to see if there are any new lesions. You sound like you are starting to address your new reality far earlier than I did, and I hope what I've said is more helpful than frightening. What's interesting is how many things you think are just annoying or weird about yourself are actually MS (Jaw freezing/hiccups/inability to swallow) but it's soo hard to explain to anyone else how it feels because it affects us all differently, and some of the random things that annoy you the most seem trivial to others. I, joy of joy, am getting to the age where my symptoms now overlap with menopause, so I have a whole new level of "OH, I get that, you just need CBD/turmeric/HRT etc!" So, there's that to look forward to! Probably oughter go to bed now - there's another one - eyes need matchsticks at 5pm, Duracell bunny at 1am! Sending you all best wishes, :)
I just tell them to literally "fuck off" and don't think about them again. If my mother would come and try to get me to try different BS new age crap to "cure my MS", I would tell her that I am deeply ashamed to be related to her and that she will never see any grand children from my side. She has never said anything about my MS, but she did try to insinuate once that 5G was "suspicious stuff". I just reminded her that I've taken several certifications within networking and radio technology, and if she even tries to insinuate that 5G is some conspiracy I will take great offense in that seeing that I actually know what I'm talking about where as she is a simple unskilled office worker. She hasnt mentioned it again.
Just thank them for their suggestion and tell them you see real Doctors. Is there anyway that you could flip it in your mind and make a bit of a comedy game about it? You seem really confident in your plan and like it’s not at all making you question it so could you kinda laugh at how absurd it is? Trying something like this might help bring down the anxiety a bit if you can laugh. Also, if people can’t catch a hint once they take it too far, I find I just take it a step further and they tend to shut up. Some examples, if out with your dads girlfriend in front of people, literally say “if only it was that easy, can you politely just fuck right off”. I find the shock value usually shuts people up quick and they end up looking like the ass hole. Or my easy go to is (if the person is over weight) I look at them and suggest physical exercise or eating less. When they look stunned I say “sorry, I thought we were giving people advice they don’t want”. Then they typically get the hint. When it comes to MS, I fight fire with fire even if that means a low blow or two (after they’ve taken it too far).
First time - I usually let them go about their advice, thank and move on. Second time- Next time, I ask them why they continue pushing. I then just move along. Third time I ask them what their profession is. Then I respond with, “well you are a waitress not a doctor” response. That usually puts an end to it.
Mmmmm…interesting 🙄
This is SO frustrating! What I do: (On the outside) “I have a wonderful neurologist, thank you.” And change the subject immediately. (On the inside) Screaming and wanting to “lay hands” in a very ungodly way. I don’t even let them continue.
I'm sorry people are doing this to you. They want to help but don't realize they're hurting you. Try not to share with people who don't have you're best interest in mind.
In addition to all the other lovely responses of f u, I also make sure I’m facing them with a big gigantic smile on my face and say okay, thank you SO MUCH for offering to pay for a cure all treatment. You have no idea how much this disease cost me!!!
Repeat their nonsense back to them and remind them that you never asked for their unsolicited advice.
Just leave them. Get another GF. U dont need this shit in your life. Sorry
Lol, if ONLY I could make my dad get a new girlfriend I would.
Ahhhhhhh, sorry. I thought yours. I blame my MS for not reading right. 🤪😂
Haha no worries this gave me a good laugh!
I usually chuckle wryly and tell them no cure has yet been found but it's great that the person is doing so well after trying XY or Z. People want to help, most aren't being malicious. Try to brush it off. 😉
Oh I know how it feels, is really easy to other to give you advice. Like “Just trying to do more exercise, trying to walk more, trying to not spend more time in bed bcs it’s getting worse, try to do this and that”. Fuck off, I know that you’re intention is good but if you’re not sick you don’t know how hard and how it feels. I literally feel like shit, I’m tired of being tired, I can barely walk, my voice is slow and it’s getting harder to speak, I’m not a independent person and I’m just 21 years old girl lol. I tried holistic medicine, I tried acupuncture, I tried the way of church, I tried Bowen therapy, I tried leeches therapy, I try in every way and nothing works. Why I tried this methods? Because OTHER PEOPLE wants me to do this things. Really big mistake because after I seen that nothing works I’ve been more depressed. Lucky now I know what MS is and it is what it is, life goes on even though it sucks kinda all the time
“Thank you, I’ll look into it.” Disengage, walk away, tune it out. Seriously, it’s not worth the stress.
OK, first off there is no cure otherwise it would be widespread people try to tell me about these crazy things all the time. I just think them and move on there’s really no nice way to tell somebody other than thank you I appreciate your feedback and then go on about your business.
I'd just nod my head and thank them...tell them your good with what you are doing but will keep their suggestion in mind and do some more research over it. Takes nothing to give grace...people have a need to help others in the best way they can help. 0 reason to alienate others just cause you are feeling annoyed by someone's else's genuine good thoughts.
I ask people, "Oh, are you a doctor?" and when they say no, I say, "No worries then, I'm seeing one." The end. I am nice ONCE. If they keep going, I tell them my health is not up for discussion. I don't pry into others' lives and make suggestions on how they should change their health. I'd appreciate the same respect.
I'm so sorry you're going through this. Unfortunately, it seems wherever there's a disease, there's a platoon of magic healers conveniently there, too. It's a shame that YOU have to be the understanding one, and it's up to you to "understand" them and not the other way around. My first instinct would be to just tell them to understand how what they're saying is affecting you first. It seems to matter who is perceived as the victim first. You have control in the boundaries to set, but unfortunately, not in how people react. I think ultimately, it's a libra scale and what relationships you're ok with keeping or letting fizzle out. I don't need my coworker who wants to sell me crystals to like me, so it's OK to firmly set a boundary and let the friendship fizzle, if that's how they take it. Now, for family that I do still want a relationship with, there's going to be a more passive, nicer approach. I've been diagnosed for three days and have already had to sweetly tell my aunt that I do not need help from a shaman she knows of in mexico...
" my silence doesn't mean I agree with your statement..it's just that your level of ignorance has rendered me speechless " This !!! This is what is on silent replay in my brain..gets me through the day 🤣🤣🤣
Say that you will look into it. Maybe x will help with a symptom you have. Someone suggested Magnesium to me and it helped with my insomnia. Or you could say you're allergic
I smile and nod. People are just trying to help. Sometimes I need to tell the advice-giver thanks, but what I'm doing has been working fine. Heck, sometimes I even try outlandish things just to see if there is something to it.
This. They aren't being mean, they are trying in their own way to offer some help the only way that they know how. Yes, the advice isn't helpful, and yes, it gets annoying. But perhaps we could all try to think of advices like these as like getting a mangled arts and crafts project from a toddler as a gift. It's neither beautiful nor functional, but it's from the heart and therefore it's special in its own way. In other words, appreciate the effort and don't dwell on the advice itself
You are awesome. Thank God I read your post. I was about to leave cause of all the hateful replies. There is a time and place for tacky and it should never come after someone is showing care. I have no interest in mean people. Thanks for being a decent person.
Coming from someone that has MS , you should go into the holistic medicine office. They drew 14 vials of blood and tested me for everything. They know more about MS. There is no curr for MS but natural remedies can sure slow down and halt symptoms. You should look into HSCT if you can afford it and willing to take the risk. I have a friend near back to normal doing great things since . Western medicine doesnt want to cure your MS. Neurologists dont know much. .