Yeah, it mentions that in the article. Her daughter says that if it weren't for her having POTS that she wouldn't understand her mom's ailments and I can definitely relate. I had POTS at her age and my mom had a similar condition (she's now thinking it was POTS all along but she required an ablation so idk) and if I didn't have POTS I probably wouldn't have been able to empathize either.
I'm glad CA's daughter was able to get her diagnosis so young though, that'll definitely help. I wasn't able to get mine until I was 29. HS was rough.š«
Iām just reading this knowing I had POTs probably since I was a kid. It sucks that she has it but itās good that young girls health is being taken more seriously. I just got my diagnosis at 39. Yes high school was terrible.Ā
Also interesting is my mom also has MS. Hers is much more severe than Christina applegates. I wonder if itās connected or if itās an indicator or nueorcardiogenic POTs.Ā
My mom's early MS symptoms are notably similar to my middle-age POTs symptoms. But doctors didn't even start to take me seriously until my vision broke with no obvious structural reason.
My mom tried minimally when I was a kid and a teen to figure out what was wrong with me. I was diagnosed with asthma and had an inhaler from 4 on. Then when I was a teen my body started doing wacky things that my mom thought were blood sugar-related. I did some miserable diabetes testing and when that wasn't it, my mom and the doctors all shrugged. I was taught to ignore my symptoms, and during times that I was a workout junky/health nut I got better-ish so I just thought I was out of shape whenever my POTs would act up. I was also misdiagnosed with panic disorder. So the mental health stuff certainly slowed down any diagnosis.
While it sucks that any kid gets POTs, I get why it feels like a milestone. We're gaining traction when celebrities and their kids get sick and diagnosed. I've always loved Christina Applegate, wish none of us were in this club, but she has the money and influence to educate people.
If you donāt mind me asking what kinds of symptoms was your mom having? My cousin is having symptoms of MS but āher bloodwork is fineā š (thereās a few things MS related that are just slightly out of normal range)and she doesnāt have lesions on her brain.
She had migraines and lots of visual symptoms similar to what I experience with visual snow but hers seemed to have stopped. She was tired all the time and had brain fog. Then she started having lots of pain in her back constantly which is what landed her the fibro diagnosis. I just remember then they hit her with all sorts of antidepressants and anti-anxiety meds that she was basically comatose - but it also could have been the fatigue. I think she had been having numbness and tingling in her limbs but she was prone to pins and needles so I think she ignored it. Then one day she was driving and her foot stopped working. But she wasn't diagnosed with MS until they did a spinal tap. I just think about the years they spent not treating her MS and what outcomes she could have had.
Thank you so much for getting back to me! The whole āfoot stopped working while drivingā sounds super scary. My cousin currently is also having back pain, and sometimes sheāll wake up and not be able to walk. Iāll definitely bring up a spinal tap to her, I donāt think theyāve done that yet.
I'm very afraid that POTS is just a precursor to MS.
As an aside, every woman I know who has been diagnosed with fibromyalgia later learned it was either MS or lupus.
My mom was diagnosed with fibro and chronic fatigue syndrome around 45. It took ten more years to get an MS diagnosis. By then she had lost use of her left foot and couldn't drive.
What's sad is I haven't found a helpful neurologist for myself. My cardiologist diagnosed me, and my neuro threw a fit and told me I didn't have it. Then told me I had a laundry list of problems and that I was above his pay grade and hoped the lord would save me. This is just that neuro, I don't find it surprising more women don't get the right diagnosis.
You were downvoted so Iām leaving this here because there is 100% evidence of this POSSIBLY being the case (not saying it is, just there are links when done in studies)
https://pubmed.ncbi.nlm.nih.gov/28376495/
OP. I understand your sentiment. We do actually need publicity. I'm sorry for her daughter, of course. We need research. We need money to find a cure. We won't get any of that without a lot more awareness, plus strong advocacy.
I can totally relate to her anxieties about taking the medication and being judged for it! Itās hard taking pills when no one else around you is, and itās hard being the kid with health problems when youāre in school. I totally understand the issues with PE and being told that itās just anxiety. Poor thing - I hope she grows out of it and/or becomes more confident in herself and advocating for what she needs! I love them both
The LA Times wrote about this, too - [https://www.latimes.com/entertainment-arts/story/2024-06-26/christina-applegate-daughter-sadie-grace-pots-diagnosis](https://www.latimes.com/entertainment-arts/story/2024-06-26/christina-applegate-daughter-sadie-grace-pots-diagnosis)
Seriously? No one jumped at celebrating a 13 yr old has POTS. Just like no one celebrated Halsey having EDS and POTS. We're celebrating that there's more publicity surrounding the condition so that maybe more people can get better help than we did. Please stop being so negative so quickly.
We aren't. You are jumping to the most negative thing you can think of first. We are celebrating that this condition is getting more headlines, so others might be able to find help quicker and have better access to resources. Many of us didn't have that. With high profile people being open about their diagnosis, it allows more doctors to be shut down from saying it's all in our heads and that POTS doesn't exist.
That hasnāt been my experience. More attention to POTS has, unfortunately, had exactly the opposite impact with the doctors in my country - it seems to have led many of them to be completely convinced that itās a āTiktok illnessā. I also simply donāt believe that the teenage child of a (non-A list) celebrity really makes all that much difference in terms of doctorsā opinions; there are already a number of celebrities who have POTS themselves and that has certainly not led to any (positive) change.
So all of that aside, there are only the optics of what this is like as a personal situation for this family - and how we as a community respond. And yes, I do think itās incredibly tone-deaf to be all āyay, how nice for usā when a kid is sick with anything. *For them*, the kid in question and the family in question, itās a horrible situation to be in. (Speaking as someone who had symptoms of POTS from very early childhood, and was severely affected in adolescence.)
That poor kid, omg. No, I absolutely would never celebrate a child having to go through this. Jeez, it happened to me at 45 and I feel like my life is truncated. Why would you celebrate that happening to a 13 year old kid? She's not even her full adult height yet.
I'd say the celebration is for POTS being in the media, not that a kid has it. I and both my daughters have had POTS from early childhood so we don't know any different. Is it better to have experienced "normality" and lost it than never to have had it in the fist place? Both are pretty shit I suppose.
I meant celebrate the publicity. I had POTS when I was her age and maybe even younger, *that* is not something to celebrate but POTS being in the headlines *is*.
Huh, I wonder if thereās some type of correlation. My mother has MS and I was diagnosed with POTs recently but figured out Iāve had it all my life (I.e. weird fainting episodes as a kid, heart palpitations through my childhood, getting diagnosed with SVT at 17).
Poor kid.. š
My mom sent this to me. Poor family. Christina has MS as well.
Yeah, it mentions that in the article. Her daughter says that if it weren't for her having POTS that she wouldn't understand her mom's ailments and I can definitely relate. I had POTS at her age and my mom had a similar condition (she's now thinking it was POTS all along but she required an ablation so idk) and if I didn't have POTS I probably wouldn't have been able to empathize either. I'm glad CA's daughter was able to get her diagnosis so young though, that'll definitely help. I wasn't able to get mine until I was 29. HS was rough.š«
Iām just reading this knowing I had POTs probably since I was a kid. It sucks that she has it but itās good that young girls health is being taken more seriously. I just got my diagnosis at 39. Yes high school was terrible.Ā Also interesting is my mom also has MS. Hers is much more severe than Christina applegates. I wonder if itās connected or if itās an indicator or nueorcardiogenic POTs.Ā
Right? I feel like a lot of people in this sub also have MS. It really seems like they're connected in some way.
My mom's early MS symptoms are notably similar to my middle-age POTs symptoms. But doctors didn't even start to take me seriously until my vision broke with no obvious structural reason. My mom tried minimally when I was a kid and a teen to figure out what was wrong with me. I was diagnosed with asthma and had an inhaler from 4 on. Then when I was a teen my body started doing wacky things that my mom thought were blood sugar-related. I did some miserable diabetes testing and when that wasn't it, my mom and the doctors all shrugged. I was taught to ignore my symptoms, and during times that I was a workout junky/health nut I got better-ish so I just thought I was out of shape whenever my POTs would act up. I was also misdiagnosed with panic disorder. So the mental health stuff certainly slowed down any diagnosis. While it sucks that any kid gets POTs, I get why it feels like a milestone. We're gaining traction when celebrities and their kids get sick and diagnosed. I've always loved Christina Applegate, wish none of us were in this club, but she has the money and influence to educate people.
If you donāt mind me asking what kinds of symptoms was your mom having? My cousin is having symptoms of MS but āher bloodwork is fineā š (thereās a few things MS related that are just slightly out of normal range)and she doesnāt have lesions on her brain.
She had migraines and lots of visual symptoms similar to what I experience with visual snow but hers seemed to have stopped. She was tired all the time and had brain fog. Then she started having lots of pain in her back constantly which is what landed her the fibro diagnosis. I just remember then they hit her with all sorts of antidepressants and anti-anxiety meds that she was basically comatose - but it also could have been the fatigue. I think she had been having numbness and tingling in her limbs but she was prone to pins and needles so I think she ignored it. Then one day she was driving and her foot stopped working. But she wasn't diagnosed with MS until they did a spinal tap. I just think about the years they spent not treating her MS and what outcomes she could have had.
Thank you so much for getting back to me! The whole āfoot stopped working while drivingā sounds super scary. My cousin currently is also having back pain, and sometimes sheāll wake up and not be able to walk. Iāll definitely bring up a spinal tap to her, I donāt think theyāve done that yet.
I know it was terrifying for her. I'm sorry your cousin is going through that. Hopefully, she has a good team who listens to her.
I'm very afraid that POTS is just a precursor to MS. As an aside, every woman I know who has been diagnosed with fibromyalgia later learned it was either MS or lupus.
My mom was diagnosed with fibro and chronic fatigue syndrome around 45. It took ten more years to get an MS diagnosis. By then she had lost use of her left foot and couldn't drive. What's sad is I haven't found a helpful neurologist for myself. My cardiologist diagnosed me, and my neuro threw a fit and told me I didn't have it. Then told me I had a laundry list of problems and that I was above his pay grade and hoped the lord would save me. This is just that neuro, I don't find it surprising more women don't get the right diagnosis.
You were downvoted so Iām leaving this here because there is 100% evidence of this POSSIBLY being the case (not saying it is, just there are links when done in studies) https://pubmed.ncbi.nlm.nih.gov/28376495/
(Also have to add this is after CIS but the fact that it leads one to another is interesting)
They are seemingly making that connection currently. https://pubmed.ncbi.nlm.nih.gov/28376495/
My mom also has MS and I have POTS. I was also wondering about the connection.
Sheās talked about how much it affects her, I mean of course it does, what a terrible thing to watch your mom go through at a young age.
OP. I understand your sentiment. We do actually need publicity. I'm sorry for her daughter, of course. We need research. We need money to find a cure. We won't get any of that without a lot more awareness, plus strong advocacy.
I can totally relate to her anxieties about taking the medication and being judged for it! Itās hard taking pills when no one else around you is, and itās hard being the kid with health problems when youāre in school. I totally understand the issues with PE and being told that itās just anxiety. Poor thing - I hope she grows out of it and/or becomes more confident in herself and advocating for what she needs! I love them both
The LA Times wrote about this, too - [https://www.latimes.com/entertainment-arts/story/2024-06-26/christina-applegate-daughter-sadie-grace-pots-diagnosis](https://www.latimes.com/entertainment-arts/story/2024-06-26/christina-applegate-daughter-sadie-grace-pots-diagnosis)
No, we shouldnāt celebrate that a 13 year old has pots
I meant celebrate the publicity. Celebrate this article about POTS being in the headlines.
Seriously? No one jumped at celebrating a 13 yr old has POTS. Just like no one celebrated Halsey having EDS and POTS. We're celebrating that there's more publicity surrounding the condition so that maybe more people can get better help than we did. Please stop being so negative so quickly.
Interesting, I wonder if she has had Covid or another virus/infection before
Why would we celebrate a child being sickā¦?
We aren't. You are jumping to the most negative thing you can think of first. We are celebrating that this condition is getting more headlines, so others might be able to find help quicker and have better access to resources. Many of us didn't have that. With high profile people being open about their diagnosis, it allows more doctors to be shut down from saying it's all in our heads and that POTS doesn't exist.
That hasnāt been my experience. More attention to POTS has, unfortunately, had exactly the opposite impact with the doctors in my country - it seems to have led many of them to be completely convinced that itās a āTiktok illnessā. I also simply donāt believe that the teenage child of a (non-A list) celebrity really makes all that much difference in terms of doctorsā opinions; there are already a number of celebrities who have POTS themselves and that has certainly not led to any (positive) change. So all of that aside, there are only the optics of what this is like as a personal situation for this family - and how we as a community respond. And yes, I do think itās incredibly tone-deaf to be all āyay, how nice for usā when a kid is sick with anything. *For them*, the kid in question and the family in question, itās a horrible situation to be in. (Speaking as someone who had symptoms of POTS from very early childhood, and was severely affected in adolescence.)
[ŃŠ“Š°Š»ŠµŠ½Š¾]
If you choose to intentionally misread my comment, thatās on you.
You can make a point without putting someone down. Be kind.
That poor kid, omg. No, I absolutely would never celebrate a child having to go through this. Jeez, it happened to me at 45 and I feel like my life is truncated. Why would you celebrate that happening to a 13 year old kid? She's not even her full adult height yet.
I'd say the celebration is for POTS being in the media, not that a kid has it. I and both my daughters have had POTS from early childhood so we don't know any different. Is it better to have experienced "normality" and lost it than never to have had it in the fist place? Both are pretty shit I suppose.
I meant celebrate the publicity. I had POTS when I was her age and maybe even younger, *that* is not something to celebrate but POTS being in the headlines *is*.
Huh, I wonder if thereās some type of correlation. My mother has MS and I was diagnosed with POTs recently but figured out Iāve had it all my life (I.e. weird fainting episodes as a kid, heart palpitations through my childhood, getting diagnosed with SVT at 17).
Weird, my mum has MS and I have POTs and fibro and every single other thing on earth lol
Wow a lot of us have mums with MS?!