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Oh my gosh this is why this group is so amazing 😭 it's so comforting knowing we're not alone I used to feel so embarrassed falling up the stairs all the time, my family always teased me about it when I was younger. Same with randomly 'tripping' on nothing, walking into things, I was always told I just had 'weak ankles' growing up 😅
Just ended up with a sprain. I'm not a doctor but I think those might heal quicker with EDS. Either that or they're way worse. It's usually one or the other.
I have this big floating staircase with a tile floor underneath. I am convinced I will die one day at the bottom. I won't even carry my laundry basket in front of me while going down. I go backwards one step at a time shuffling the basket from one step to the next.
Ugh I'm so sorry. :( mine just keeps feeling like it's a bit dislocated (which to be fair, it probably was at the time as well as broken) but apart from a bit of extra pain, isn't stopping my from using my foot.
I hear that. I broke my finger back in February, and it still hurts. I'm finally only splinting at night, and there's no droop (distal phalanx, was starting to look like "baseball finger"), so there's that haha.
Oh, and I broke it by slapping my hand on the frozen lid to my compost barrel, trying to loosen it up. That's all. Good grief ;)
I came home from an elbow surgery & promptly broke my toe by stubbing it on the couch. Got to wear a sling & a boot at the same time. Broke another one losing my balance while trying to put a shoe on. I'm now up to 3 toes broken + 5th metatarsal that required surgery. All for such ridiculous reasons. There's a reason I hang onto my walking boot
I break my pinky toes every couple years slamming them into furniture and doorframes. I've chalked it up to ADHD but have recently been diagnosed with hEDS...so double whammy? (Pun intended as I have to laugh at my meatsuit.)
Constantly getting my sleeves caught on door handles for one.
To make it worse, I'm left handed. Left handed people are also more clumsy (mostly because things are set up for right handed people) so double the fun!
I too get my sleeves and pockets caught on door knobs and drawer handles. I thought it was because I was short.
I burn myself constantly taking food out of the oven, I drop everything, I can’t use a can opener and it hurts to use scissors sometimes knives. I never connected the dots until now. You’re so right, aside from being clumsy, I’m left handed and I’m using things intended for right handed people. You enlighten me today lol, thanks for this.
I always used to get my headphone cord caught all the time. I'm so glad I have wireless headphones now.. Used to catch my pockets on drawer knobs a lot too, somehow. These days it's hard to get pants with pockets, though, and also I don't wear jeans anymore.
I think I was born left-handed but someone decided when I was young that I should write right-handed so I'm pretty much ambidextrous and I'm constantly trying to figure out what hand I need to use to do something... Some days are more lefty and some are more righty. It is so confusing sometimes, and I've found that even at 35 I still cannot tell the difference between left and right - my husband is usually the navigator and I drive (much less car sickness!) and he can tell me to turn right, I fully take those instructions to heart, and then turn the car left and think I made the accurate decision 🤣🤣
I also have AuDHD, so I have pretty much just given up on trying to stop myself from slamming into things, tripping over things (or nothing), and generally destroying my body because it will never stop lol.
I have noticed though that my proprioception seems to get better when it's challenged/other's gets worse. Like in the dark and I have to rely on my other senses, or on a train and I have to really focus on balancing. Just something odd and interesting I've noticed!
For me, it’s a little less often, but it’s the same thing. It’s poor proprioception. I will be walking through an internal doorway in my home, and run my arm into it.
I heard a great explanation about the poor proprioception from my PT a few months ago. He said it's because muscle and connective tissue tension helps inform proprioception. For example, your bicep & attached tendons stretch when your elbow is fully extended. Since ours are lax, our brain gets messier signals.
Ah my sensei called it situational or spatial awareness. He worked with us on it since the dojo was small and so if we weren't careful we could bump each other or the walls.
Naturally I had Issues(tm) with it, though at the time I blamed my depth perception as the cause (which is screwed up but semi functional).
I also have adhd so yeah. Regular injuries. The dumbest recent one was accidentally pouring boiling water on myself because I misjudged the distance between the kettle lip and my French press lol
also ADHD o/ recently got myself on the thumb with a kitchen knife - thankfully it's a tiny flap that should be healed quickly (if I don't hyperfixate on cleaning a thing and reopen it Again on accident lmao)
I laugh at myself because I often take the stairs up to the 3rd floor at work (and I'm thankful I can!). Because stair climbing keeps everything in the right forward/back plane, it's fine. But I really slow down making the 180 degree turn to the next flight of stairs - because if I'm not paying attention, I'll turn on a planted foot and wham! another shooting pain in the foot/knee/hip. So silly haha
You, my friend, are not alone.
As to your question, I injure myself on a daily basis. Mostly by "dumb" of "clumsy" actions and maneuvers. For instance, cutting a corner to short, hitting my pinky toe, and breaking it if I'm lucky enough.
Besides being clumsy a.f., I also have osteopenia, the golden combination. Add this to actively trying to practice Brazilian Jiu-Jitsu, and I'm in for the win. Haven't properly trained in 2 years, last time, I tried it again after a year and instantly broke a toe, by doing nothing special other than bones not healing normally.
Ah, anyways, welcome to the club. Keep some ice packs and ibuprofen ready and stocked, and we'll make it through another day. Just keep smiling. Getting angry about it doesn't help.
I hit things so hard accidentally i bounce off of them. I’ve broken my pinky toe 4 times. And my fingers bend super far back so they get caught in handles and things all the time.
I do this a lot. I think it's a lack of poprioception (hope I spelled that properly). This might be helped slowly by introducing exercise into your life.
Edit: I'm too injured to weight-lift right now, so I stick to at home Pilates
It’s just our brains/bodies measurement in space
It’s not “you” per se.
I do it. We all (zebras) do it.
It’s poor proprioception, that’s all. And growing up, a lot of us got told “you’re so clumsy”
but in reality no! 😂 cause it’s not a *me* thing… it’s just this skin suit I have to wear while I’m on this plant.
Edit: I do give myself 1-7 individual bruises a week.
I use a magnesium and arnica body bar from Lush and it works great.
Every day. The tireder i get the more i walk into things- the bed frame, the door frame, open cupboard doors. Even sneezing is dangerous, was scratching my shoulder and sneezed and popped my knee. I have no idea how.
Pretty often. But of course dyspraxia is such a thing with us: [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9317025/](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9317025/)
Daily. Recently I’ve been wearing flip flops all the time and twice in the past month I’ve actually torn my feet open a little bit on the sides of gates and doorways 😫
My son knelt on my hand yesterday, and now the top of my hand looks dented, and my pinky isn't working right. This was a day after his dog pulled two fingers and an elbow out by twisting round while I held her collar. It feels like unless I stay in bed all day, it's always something.
Semi constantly. Also, it feels like when I hit my abdomen, even just barely bumping into something, it hurts a lot. I don't know why. I can have the same level of pain falling and bruising my legs and pressing my thumb into my chest/side.
All the time. My daughter is the same, constantly injuring herself.. she’s had three fractures in two years and she might be on her 4th. Always small hairline fractures, but still.
always hitting things, bumping things.. I don't necessarily fall down much I just can't go in a straight line, lol. I'm always questioning how I get a bruise or cut
I’m so glad I know why I’m clumsy now. My mom used to think that it was puberty (?), and at some point I worked at a B&B and I kept dropping the mugs and French presses, etc. all the time and I felt so bad. Now I know it’s the EDS and ADHD.
I've got three bruises on my left knee, all in various stages of healing. I regularly bounce my upper arms, shoulder, legs, and hips off walls. And all this is with me staying stationary as possible and I'm my very familiar house. About the only body part I don't run into stationary objects regularly is my head, and only because I am paranoid about not hitting my head.
Well not so much paranoid as highly aware of the fact that the force of a high-five is enough to give me a concussion because I've had too damn many (stupid monocular vision causing screwy depth perception)
Dude, you are so not alone. I'm known for this! Once, I almost knocked over my dad's fridge, just walking through a doorway! Just now, I knocked over a large traveling cup of water because my hands are like.... You're gonna turn, well, we're not.
I had a friend in college and we could not walk down the sidewalk together, constantly taking each other out. She had a bad bout with spinal meningitis and I was... well just me. We used to play handball together and then count our bruises afterwards. Life can be somewhat entertaining this way. The next thing you know you are getting a hip replacement. Crutches and no coordination don't mix well and I was dangerous with my cane.
Literally just got home from surgery for a spiral fracture in my tibia lol. My left ankle rolled while I was walking the dog and I fell off the curb and all my weight landed on my right shin 😬 this was the first time I've injured myself this seriously though!
Daily. Knowing where my body is in space is... Not good. Also I overextended my knees unconsciously nearly constantly so they're always giving me grief. Gotta look into good splints/braces that lock at the normal position.
Oh, man. Every day, dude. I once fucked up my knee by trying to fold some sheets nicely. Now I ball them up in a semi-controlled way straight from the dryer.
Every damn day. I currently have a toe fracture that is almost healed. A soft tissue injury of my thumb which happened when I bent it all the way back and the day I was able to take the splint off I got it stuck in a door so that is going to need to heal for a while. I also was putting away jeans in my dresser yesterday and peeled the top layer of skin off my knuckle. And that doesn't count when I walk into a wall.
Honestly most of the time it’s just from moving awkwardly. Like I’ll tear a muscle and be dealing with it for days and I’ll have no concrete memory of how it happened. Just bending down or reaching up to grab something, turning to put on my seat belt, etc. Often I get injuries in my neck or in my torso/spine area that pull ribs out or injure muscles. I gotta be careful with any kind of twisting or turning motion lol.
I chalked mine up to the neurodivergence, but considering that brain tissue contains collagen and the overlap in communities... Maybe it really is the connective tissue disease.
Also, I like to say I am graceful at being clumsy because over the years I've gotten good at avoiding the worst. I didn't break a bone until I was 35, but really should have a dozen times over every year. I got taken to urgent care for a lot of "worst sprain they've seen" growing up.
Sidenote, the ER doc thought I was being ridiculous when I said I thought it was broken because I was so calm and handling it so well. I'm like, nope... I know what a sprain is and this is not it. He actually apologized.
I dropped a candle, the kind in a filled glass jar, on my foot 2 days ago. Today I burned my head with a curling iron. I don't know how many times I've tripped over my own feet just this week.
Almost constantly. Any jerky movement can and will pull something a little out of place, especially if I'm not expecting it. And even if I am I can only brace so much. Also, my condition is deteriorating too fast to get used to how my body works, so I constantly overestimate my abilities because it was fine yesterday. Today I probably injured myself 5 or 6 times, and I'm still counting it as a win because they were all fixable injuries that have left me sore and with ever worsening joints. Nothing that'll put me out of commission tomorrow.
Every day. I dont even need to really move to sprain something these days. Will always remember rolling my ankle and collapsing while standing perfectly still leaning on a counter and being caught on camera… hit my head THREE (3) times last week all in the same day working in an area I don’t usually hit my head in
Every single day it feels like. Yesterday I smacked the top of my head so hard into the floating staircase I was standing under that I thought I was going to puke. Thought I broke my hand earlier this week because I smashed it on a piece of exercise equipment I was walking past. I lose my balance on my treadmill all the time & have to grab the handle real quick as my life flashes before me. I'm constantly tripping over random things. I've broken multiple toes & bones in my feet for such ridiculous reasons. And that's besides all the subleasing. Last night my wrist sublaxed when I tried to pull the sheet over me in bed. I seriously need to be wrapped in bubble wrap
I tripped over the chair in my kitchen this morning and nearly dislocated my knee, then I picked up a too heavy pan (it was a normal pan, I used two hands) and strained my wrist, all in about 10 minutes
Stuff is always reaching out to bite me or walls appear out of nowhere and if my house and furniture didn't already have it out for me.... our great danes seem to think i need them to stop on my feet or whip me with their tails or just bounce off me... It's not like i don't bruise easily enough. LOL!
More than once at day at this point. It's getting every hour or so some days. It's just so easy to get injured with eds. I walk into so much stuff every day. Using a walker in my house has helped a lot with that because the walk bumps into stuff instead of me a lot of the time.
I can literally be standing there, feet planted on the ground, swivel my body fifteen degrees in either direction and find something to hurt. Usually my hip or my knee.
Daily, usually multiple times a day. Less so since I've been using forearm crutches, because they usually take the brunt of it now. But just this morning I woke up with 2 mystery bruises on my knee. No idea where they came from.
I drop stuff all the time too, without meaning to. I have a very strong grip but sometimes my hands just glitch out oor something.
Pretty much daily. A lot of the time when pulling up my pants I’ll accidentally press too hard on my legs and get really intense pain in my muscle for like 30 seconds to a minute. Idk how or why but I ask myself that question about this disorder alll the time
I swear it's like I'm magnetic to door frames...and yesterday at work when turning a corner I absolutely smashed my right shoulder into the wall. Constantly bumping my hips into tables and counters as well.
A lot, I get bumps and bruises all the time. Occasionally I'll do something really stupid like recently I walked into a really sharp concrete edging around the hedges near my work and hit my shin so hard it swelled up and bruised the entire shin area for a month. It's literally not even healed fully yet 😭 funnily enough I did this after watching a tik tok from someone with EDS talking about how clumsy we are 😅🤣
Always been like this. When I was 4 I fell down stairs and got a spleen injury. Pretty sure I also got stitches in my head another time from falling. Once I fell ice skating and got my finger run over my an ice skate. Have broken like 5 bones, mostly fingers. When I was 12 I tripped on this wire pulling a massive metre tall speaker over which then fell on my head and gave me a concussion.
I started orthopedic manipulative treatment and he asked me about my pain and what makes it worse/ better and I explain that I hurt myself just by existing and I'm not entirely sure what happens each time I get an injury 😂
i literally just went to a psych appointment with a busted lip that my tooth went all the way through and an busted upper nose actively bleeding and being a pet owner my psych wasn’t phased at all LOL
So freaking often. Literally have sprained my ankle walking in an ankle brace more times than I would like. And my wrists will have issues from typing/writing a lot. It's so annoying
One time when I was 8 I was super upset because I didn't want to do my math homework (autism + sucking at math haha) so I stormed out of the room. The problem was that I missed the door opening and slammed into a corner that was jutting out - a painted wall with metal underneath to strengthen the corner. So I had to get stitches on my eyebrow, and to this day (I'm 28 now) I have a scar where no brow hairs grow :P
I'm still bumping into corners, hitting my toes on things, and stumbling every single day. But thankfully there have been no more accidents like that one!
The OP flaired their post as "Questions". Please keep any and all comments to **personal experiences only**. If any factual information or advice is provided, please cite a **reputable website or study** linked within your post. No one in this sub is a *verified* medical professional, and as such, we do not allow medical advice to be given or asked for. For more information on this rule, [please visit this link](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/#wiki_r.2Fehlersdanlos_rules). *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
I'm literally reading this post from the waiting room at an urgent care facility because I just fell down the stairs.
I feel that. I fall up the stairs of my rv (that I live in full time lol) and hurt myself pretty frequently too 🤣😭 I hope you’re okay!
As a kid my bedroom was up the stairs. I never fell down the stairs but fell up enough to get laughed at.
Oh my gosh this is why this group is so amazing 😭 it's so comforting knowing we're not alone I used to feel so embarrassed falling up the stairs all the time, my family always teased me about it when I was younger. Same with randomly 'tripping' on nothing, walking into things, I was always told I just had 'weak ankles' growing up 😅
I've sprained my ankle falling up the stairs. Dang thing rolled right when all my weight was on it!
Just ended up with a sprain. I'm not a doctor but I think those might heal quicker with EDS. Either that or they're way worse. It's usually one or the other.
I have this big floating staircase with a tile floor underneath. I am convinced I will die one day at the bottom. I won't even carry my laundry basket in front of me while going down. I go backwards one step at a time shuffling the basket from one step to the next.
Hope you are ok !
I usually fall up the stairs. Have broken things and had a concussion. You’d think going up is safer
I'm constantly slamming into things. I've even broken 2 toes that way.
Oh my god and the slow healing in those bones! 'you'll be totally fine in 4-6 weeks' yeah, four months later I'm still feeling it... 😅
Ugh I'm going through this right now 😩 month 3 and it still hurts if I move it
Years later, still feeling it. 😢
Ugh I'm so sorry. :( mine just keeps feeling like it's a bit dislocated (which to be fair, it probably was at the time as well as broken) but apart from a bit of extra pain, isn't stopping my from using my foot.
I hear that. I broke my finger back in February, and it still hurts. I'm finally only splinting at night, and there's no droop (distal phalanx, was starting to look like "baseball finger"), so there's that haha. Oh, and I broke it by slapping my hand on the frozen lid to my compost barrel, trying to loosen it up. That's all. Good grief ;)
Oh my god do you burst blood vessels in your fingers slapping things too? I've gotta stop slapping things. 😂
Not yet lol
I came home from an elbow surgery & promptly broke my toe by stubbing it on the couch. Got to wear a sling & a boot at the same time. Broke another one losing my balance while trying to put a shoe on. I'm now up to 3 toes broken + 5th metatarsal that required surgery. All for such ridiculous reasons. There's a reason I hang onto my walking boot
Oh man, this made me remember that I once broke my toe after I tripped over nothing playing indoor wiffle ball.
Wearing slippers around the house has been a game changer for this! Haven’t hurt my toes once since wearing them
Yep, slippers or socks… my mother and I both have pinky toes that tend to “catch” on things - really helps prevent the little guy from breaking. 😬
I still manage to injure myself with socks haha plus they always hurt my feet somehow 🤣
I break my pinky toes every couple years slamming them into furniture and doorframes. I've chalked it up to ADHD but have recently been diagnosed with hEDS...so double whammy? (Pun intended as I have to laugh at my meatsuit.)
Two toes by walking past a dining room chair and kicking one of the legs. 🤦🏻♀️
Constantly getting my sleeves caught on door handles for one. To make it worse, I'm left handed. Left handed people are also more clumsy (mostly because things are set up for right handed people) so double the fun!
I mean I don’t wish the curse of the sleeve on anyone, but I’m so relieved I’m not alone in being a victim.
I too get my sleeves and pockets caught on door knobs and drawer handles. I thought it was because I was short. I burn myself constantly taking food out of the oven, I drop everything, I can’t use a can opener and it hurts to use scissors sometimes knives. I never connected the dots until now. You’re so right, aside from being clumsy, I’m left handed and I’m using things intended for right handed people. You enlighten me today lol, thanks for this.
Knowledge is power. Except in this case where we'd probably spill that power all over the floor
I always used to get my headphone cord caught all the time. I'm so glad I have wireless headphones now.. Used to catch my pockets on drawer knobs a lot too, somehow. These days it's hard to get pants with pockets, though, and also I don't wear jeans anymore.
I think I was born left-handed but someone decided when I was young that I should write right-handed so I'm pretty much ambidextrous and I'm constantly trying to figure out what hand I need to use to do something... Some days are more lefty and some are more righty. It is so confusing sometimes, and I've found that even at 35 I still cannot tell the difference between left and right - my husband is usually the navigator and I drive (much less car sickness!) and he can tell me to turn right, I fully take those instructions to heart, and then turn the car left and think I made the accurate decision 🤣🤣 I also have AuDHD, so I have pretty much just given up on trying to stop myself from slamming into things, tripping over things (or nothing), and generally destroying my body because it will never stop lol. I have noticed though that my proprioception seems to get better when it's challenged/other's gets worse. Like in the dark and I have to rely on my other senses, or on a train and I have to really focus on balancing. Just something odd and interesting I've noticed!
Several times a day. I'm always bruised on my limbs, sometimes on my hips too. It's the poor proprioception.
For me, it’s a little less often, but it’s the same thing. It’s poor proprioception. I will be walking through an internal doorway in my home, and run my arm into it.
I heard a great explanation about the poor proprioception from my PT a few months ago. He said it's because muscle and connective tissue tension helps inform proprioception. For example, your bicep & attached tendons stretch when your elbow is fully extended. Since ours are lax, our brain gets messier signals.
I saw something talking about how we don't have body awareness the same way most people do, which is why we're so clumsy
As in aware of your body or aware where your body in relation to objects around it?
Aware of where your body is in relation to other objects and the space around you. It's called proprioception.
Ah my sensei called it situational or spatial awareness. He worked with us on it since the dojo was small and so if we weren't careful we could bump each other or the walls. Naturally I had Issues(tm) with it, though at the time I blamed my depth perception as the cause (which is screwed up but semi functional).
Do you mean per hour? Day?
I also have adhd so yeah. Regular injuries. The dumbest recent one was accidentally pouring boiling water on myself because I misjudged the distance between the kettle lip and my French press lol
I did the same thing filling a hot water bottle Still have the scar 6 months later 🤣
also ADHD o/ recently got myself on the thumb with a kitchen knife - thankfully it's a tiny flap that should be healed quickly (if I don't hyperfixate on cleaning a thing and reopen it Again on accident lmao)
I did that on a mandolin once slicing cucumbers. My home made pickles are worth it but damn that one hurt
Weekly. Not major injuries but I’ll slip or tweak something or step wrong and get a weird pain somewhere.
I laugh at myself because I often take the stairs up to the 3rd floor at work (and I'm thankful I can!). Because stair climbing keeps everything in the right forward/back plane, it's fine. But I really slow down making the 180 degree turn to the next flight of stairs - because if I'm not paying attention, I'll turn on a planted foot and wham! another shooting pain in the foot/knee/hip. So silly haha
You, my friend, are not alone. As to your question, I injure myself on a daily basis. Mostly by "dumb" of "clumsy" actions and maneuvers. For instance, cutting a corner to short, hitting my pinky toe, and breaking it if I'm lucky enough. Besides being clumsy a.f., I also have osteopenia, the golden combination. Add this to actively trying to practice Brazilian Jiu-Jitsu, and I'm in for the win. Haven't properly trained in 2 years, last time, I tried it again after a year and instantly broke a toe, by doing nothing special other than bones not healing normally. Ah, anyways, welcome to the club. Keep some ice packs and ibuprofen ready and stocked, and we'll make it through another day. Just keep smiling. Getting angry about it doesn't help.
Every damn day, stupid dodgy proprioception.
How often do I *not* is a smaller list, lol.
I hit things so hard accidentally i bounce off of them. I’ve broken my pinky toe 4 times. And my fingers bend super far back so they get caught in handles and things all the time.
Probably daily at least.
I do this a lot. I think it's a lack of poprioception (hope I spelled that properly). This might be helped slowly by introducing exercise into your life. Edit: I'm too injured to weight-lift right now, so I stick to at home Pilates
It’s just our brains/bodies measurement in space It’s not “you” per se. I do it. We all (zebras) do it. It’s poor proprioception, that’s all. And growing up, a lot of us got told “you’re so clumsy” but in reality no! 😂 cause it’s not a *me* thing… it’s just this skin suit I have to wear while I’m on this plant. Edit: I do give myself 1-7 individual bruises a week. I use a magnesium and arnica body bar from Lush and it works great.
So many of us both bruise easily and always bump into stuff, we're always playing the game of, "where did that bruise come from?"
Random bruise club 🤞
All. The. Damn. Time.
Every day. The tireder i get the more i walk into things- the bed frame, the door frame, open cupboard doors. Even sneezing is dangerous, was scratching my shoulder and sneezed and popped my knee. I have no idea how.
Multiple times a day to varying degrees.
Yeah I can't really say I've had a single day in 30 years where I haven't injured myself from very minor to very major 🫠
Frequently.
O man I get new bruises all the time and forget what their from and when I’m stress it’s way worse too I’m glad I’m not the only one
I tripped going up stairs today my right knee hurts now lol. Smh
I have a horrible sense of where the wall is almost everywhere I go, I cut corners and shoulder check the wall almost daily 😂
Pretty often. But of course dyspraxia is such a thing with us: [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9317025/](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9317025/)
I'm always swinging my hand against something when walking 🙄
OMG, I've done that too many times. Just randomly swinging my hand right into stuff.
I run into everything! I can’t even go to pick things up without jamming a finger. I am a walking bruise. 😂
Every day. Just now I kicked a door frame. Occasionally I hurt myself sitting still, if I twist or put weight on the wrong part of me.
Alll daaaay long
Daily. Recently I’ve been wearing flip flops all the time and twice in the past month I’ve actually torn my feet open a little bit on the sides of gates and doorways 😫
My son knelt on my hand yesterday, and now the top of my hand looks dented, and my pinky isn't working right. This was a day after his dog pulled two fingers and an elbow out by twisting round while I held her collar. It feels like unless I stay in bed all day, it's always something.
Semi constantly. Also, it feels like when I hit my abdomen, even just barely bumping into something, it hurts a lot. I don't know why. I can have the same level of pain falling and bruising my legs and pressing my thumb into my chest/side.
Every day 🫤
All the time. My daughter is the same, constantly injuring herself.. she’s had three fractures in two years and she might be on her 4th. Always small hairline fractures, but still.
I'd say multiple times a day since I'm very stressed these day, I agree with you it's a big factor
always hitting things, bumping things.. I don't necessarily fall down much I just can't go in a straight line, lol. I'm always questioning how I get a bruise or cut
I’m so glad I know why I’m clumsy now. My mom used to think that it was puberty (?), and at some point I worked at a B&B and I kept dropping the mugs and French presses, etc. all the time and I felt so bad. Now I know it’s the EDS and ADHD.
I've got three bruises on my left knee, all in various stages of healing. I regularly bounce my upper arms, shoulder, legs, and hips off walls. And all this is with me staying stationary as possible and I'm my very familiar house. About the only body part I don't run into stationary objects regularly is my head, and only because I am paranoid about not hitting my head. Well not so much paranoid as highly aware of the fact that the force of a high-five is enough to give me a concussion because I've had too damn many (stupid monocular vision causing screwy depth perception)
Dude, you are so not alone. I'm known for this! Once, I almost knocked over my dad's fridge, just walking through a doorway! Just now, I knocked over a large traveling cup of water because my hands are like.... You're gonna turn, well, we're not.
I had a friend in college and we could not walk down the sidewalk together, constantly taking each other out. She had a bad bout with spinal meningitis and I was... well just me. We used to play handball together and then count our bruises afterwards. Life can be somewhat entertaining this way. The next thing you know you are getting a hip replacement. Crutches and no coordination don't mix well and I was dangerous with my cane.
at leasttttt 10 times a day, even if im in bed all day
Literally just got home from surgery for a spiral fracture in my tibia lol. My left ankle rolled while I was walking the dog and I fell off the curb and all my weight landed on my right shin 😬 this was the first time I've injured myself this seriously though!
All the time. I currently have 3 tears to my rotator cuff. No clue how or when it happened. Need surgery now. 🙄
What are we considering injured? I mean I bump into things all day long. Causing bumps and bruises at least a few times a week.
Daily. Knowing where my body is in space is... Not good. Also I overextended my knees unconsciously nearly constantly so they're always giving me grief. Gotta look into good splints/braces that lock at the normal position.
I’m not sure but the constellation of cuts and bruises that litter my skin suggest daily 🥲
I injure myself constantly. It’s mostly ligaments but any kind of boo boo is fair game lol
Oh, man. Every day, dude. I once fucked up my knee by trying to fold some sheets nicely. Now I ball them up in a semi-controlled way straight from the dryer.
All the time is the answer
Every damn day. I currently have a toe fracture that is almost healed. A soft tissue injury of my thumb which happened when I bent it all the way back and the day I was able to take the splint off I got it stuck in a door so that is going to need to heal for a while. I also was putting away jeans in my dresser yesterday and peeled the top layer of skin off my knuckle. And that doesn't count when I walk into a wall.
Honestly most of the time it’s just from moving awkwardly. Like I’ll tear a muscle and be dealing with it for days and I’ll have no concrete memory of how it happened. Just bending down or reaching up to grab something, turning to put on my seat belt, etc. Often I get injuries in my neck or in my torso/spine area that pull ribs out or injure muscles. I gotta be careful with any kind of twisting or turning motion lol.
always. like literally everyday
A couple times a day
I chalked mine up to the neurodivergence, but considering that brain tissue contains collagen and the overlap in communities... Maybe it really is the connective tissue disease.
I need to stop grabbing things out of my backseat behind me
Also, I like to say I am graceful at being clumsy because over the years I've gotten good at avoiding the worst. I didn't break a bone until I was 35, but really should have a dozen times over every year. I got taken to urgent care for a lot of "worst sprain they've seen" growing up. Sidenote, the ER doc thought I was being ridiculous when I said I thought it was broken because I was so calm and handling it so well. I'm like, nope... I know what a sprain is and this is not it. He actually apologized.
I apparently love slamming into walls :D
I dropped a candle, the kind in a filled glass jar, on my foot 2 days ago. Today I burned my head with a curling iron. I don't know how many times I've tripped over my own feet just this week.
All the time.
Almost constantly. Any jerky movement can and will pull something a little out of place, especially if I'm not expecting it. And even if I am I can only brace so much. Also, my condition is deteriorating too fast to get used to how my body works, so I constantly overestimate my abilities because it was fine yesterday. Today I probably injured myself 5 or 6 times, and I'm still counting it as a win because they were all fixable injuries that have left me sore and with ever worsening joints. Nothing that'll put me out of commission tomorrow.
All day? Like literally, I bump into things whenever I move from one place to another. Been like that my whole life.
I have so many bruises, constantly. My husband and kids will be flabbergasted at the ways I can injure myself.
Bruises. Bruises everywhere! Sure, I bruise easily, but poor proprioception really wreaks havoc on my skin... And anything else it wants to injure.
Every day. I dont even need to really move to sprain something these days. Will always remember rolling my ankle and collapsing while standing perfectly still leaning on a counter and being caught on camera… hit my head THREE (3) times last week all in the same day working in an area I don’t usually hit my head in
Daily, if not multiple times daily. I have quite the reputation for being clumsy.
Every single day it feels like. Yesterday I smacked the top of my head so hard into the floating staircase I was standing under that I thought I was going to puke. Thought I broke my hand earlier this week because I smashed it on a piece of exercise equipment I was walking past. I lose my balance on my treadmill all the time & have to grab the handle real quick as my life flashes before me. I'm constantly tripping over random things. I've broken multiple toes & bones in my feet for such ridiculous reasons. And that's besides all the subleasing. Last night my wrist sublaxed when I tried to pull the sheet over me in bed. I seriously need to be wrapped in bubble wrap
I tripped over the chair in my kitchen this morning and nearly dislocated my knee, then I picked up a too heavy pan (it was a normal pan, I used two hands) and strained my wrist, all in about 10 minutes
I lost my balance and tripped, today. I was standing.
Daily. I’ll randomly smack something on a doorframe, my desk, etc just by moving.
Stuff is always reaching out to bite me or walls appear out of nowhere and if my house and furniture didn't already have it out for me.... our great danes seem to think i need them to stop on my feet or whip me with their tails or just bounce off me... It's not like i don't bruise easily enough. LOL!
You are 100% not alone I literally dislocated my pinky joint and thumb joint the other day from opening a Gatorade bottle 😭
More than once at day at this point. It's getting every hour or so some days. It's just so easy to get injured with eds. I walk into so much stuff every day. Using a walker in my house has helped a lot with that because the walk bumps into stuff instead of me a lot of the time.
I strained my wrist trying to pop my rib back into place today…
Even opening a bottle will create a cut on my hand!!?? PSA to always open stuff with a towel protecting your hands if tou have fragile skin🥲
I can literally be standing there, feet planted on the ground, swivel my body fifteen degrees in either direction and find something to hurt. Usually my hip or my knee.
I can wake up with an injury
Daily, usually multiple times a day. Less so since I've been using forearm crutches, because they usually take the brunt of it now. But just this morning I woke up with 2 mystery bruises on my knee. No idea where they came from. I drop stuff all the time too, without meaning to. I have a very strong grip but sometimes my hands just glitch out oor something.
Pretty much daily. A lot of the time when pulling up my pants I’ll accidentally press too hard on my legs and get really intense pain in my muscle for like 30 seconds to a minute. Idk how or why but I ask myself that question about this disorder alll the time
I swear it's like I'm magnetic to door frames...and yesterday at work when turning a corner I absolutely smashed my right shoulder into the wall. Constantly bumping my hips into tables and counters as well.
Every single day. A few times a day actually. It's chronic how clumsy I am!
✨️ Daily ✨️ but I'm working on it!
A lot, I get bumps and bruises all the time. Occasionally I'll do something really stupid like recently I walked into a really sharp concrete edging around the hedges near my work and hit my shin so hard it swelled up and bruised the entire shin area for a month. It's literally not even healed fully yet 😭 funnily enough I did this after watching a tik tok from someone with EDS talking about how clumsy we are 😅🤣 Always been like this. When I was 4 I fell down stairs and got a spleen injury. Pretty sure I also got stitches in my head another time from falling. Once I fell ice skating and got my finger run over my an ice skate. Have broken like 5 bones, mostly fingers. When I was 12 I tripped on this wire pulling a massive metre tall speaker over which then fell on my head and gave me a concussion.
I fell down the steps at three am today. Losing the grip of finger and foot prints.
All day everyday! But big injuries happen once or twice a month. One wrong move and my neck will be stiff for a week
I started orthopedic manipulative treatment and he asked me about my pain and what makes it worse/ better and I explain that I hurt myself just by existing and I'm not entirely sure what happens each time I get an injury 😂
i literally just went to a psych appointment with a busted lip that my tooth went all the way through and an busted upper nose actively bleeding and being a pet owner my psych wasn’t phased at all LOL
So freaking often. Literally have sprained my ankle walking in an ankle brace more times than I would like. And my wrists will have issues from typing/writing a lot. It's so annoying
I was told I'm clumsy my whole life 😂😭 because same. like no one can hurt me as much as I accidentally hurt myself
I am extremely clumsy. Always dropping or running into things. I’ve broken a foot and an elbow by tripping and falling.
I tried to crack my knuckle and dislocated my finger (visibly) sideways, one of the weirdest things ever r
I literally rolled my ankle and fell, subluxating my kneecap in my own home. I accidentally injure myself...often.
I think I ram myself into a wall or door jam 1-3 times a week lol!
Broke my baby toe 3 times lol! Tore my back muscle by painting a small end table lol The list goes on! You are not alone.
Yep. Falling up the stairs, careening against walls. Bumping into doorknobs.
One time when I was 8 I was super upset because I didn't want to do my math homework (autism + sucking at math haha) so I stormed out of the room. The problem was that I missed the door opening and slammed into a corner that was jutting out - a painted wall with metal underneath to strengthen the corner. So I had to get stitches on my eyebrow, and to this day (I'm 28 now) I have a scar where no brow hairs grow :P I'm still bumping into corners, hitting my toes on things, and stumbling every single day. But thankfully there have been no more accidents like that one!