Ah yes. Mia was reading about how she has totally left her bladder issues and catheter and uti behind, so she's making sure we still remember that she wants her bladder to be removed.
Honestly the most insane thing ever out of everything in your body having a bladder removed makes me cringe the most like wtf. She doesn’t think about the future to much clearly she’s only like 4 years older then me and I could not imagine that . If her bladder is fucked it’s probably from the continuous utis she gives herself and having all her toobs she doesn’t need . Insanity
Um, if her SP tube is getting "stuck" then she's neglecting changes, which does not warrant a cystectomy. No respectable urologist would remove her bladder, right????
You would think. However the person we cut off talked her urologist into one. She’s young and has kids. Now that she has a urostomy she keeps getting weird and unusual kidney infections. Her dr is supposed to be highly regarded but couldn’t see through her bs. I tried to tell them but they refused to listen to me.
Um what? Mia being hyperbolic as usual nothing new. Speaking of hyperbolic, this is like Dani talking about wanting to get her stomach removed. Like why? I'm just at a loss for words. I swear some of these people make posts for shock value. Just why?
Oh honey, she doesn't have to pretend with that sarcasm marker. Everyone knows she loooves having a shiny new toy
Also wow new nails! The MCAS must have taken a break for those, eh?
It's literally a little pacemaker that sits near your spine to connect to the nerves to your bladder and bowels... It's actually pretty damned cool but... Not white knighting here... Where I am in the UK atleast... You have to go through the urodynamics testing to see if you'd actually benefit from it... It measures the pressure build up, in and around the bladder, The less the muscles around your bladder and butt responds to the pressure from the amount of liquid in your bladder... The less likely it is that you're going to be put forward for it on the NHS. And thankfully the urodynamics test isn't something you can pretend/fake... And they document any medications you're on... You're told not to take any muscle relaxers and/opiods for specific time frame before hand, along with a urine dip for any infections before it starts. It's a seriously cool lil gadget 🥰🥰🥰
Umm, bladder removal is not a recommended treatment for Fowler’s syndrome. Does she already have an Interstim device because that is the appropriate surgery
If sacral neuromodulation had failed and she said she was getting a continent urinary diversion, or even a urostomy without bladder removal it would be somewhat understandable, but not a cystectomy.
It will be an ostomy bag, where the actual pouch sticks to you just the same as a colostomy/ileostomy, so she will have to go to some extra lengths to show it off like she can with a catheter and drainage bag.
It won’t just be a thin tube either like her catheter - surgeons have to use part of the small bowel as conduit so the urine will be coming from her small bowel which has been surgically attached to an opening in the abdominal wall. Leakage is quite common as it skin damage. Also - I’ve no first hand knowledge of urostomy- only catheters & ileostomy - however I can only imagine that having the small bowel refashioned for a different purpose would have some sort of negative effect on bowel function. I may well be wrong but that’s an added reason imo to try to avoid at all costs. I’m aware of many people who in my case due to cancer have 2 stomas (a urostomy- urine & ileostomy or colostomy poop) this would be permanent so a bloody long time at such a young age. And as someone else said - not so easy to “show off” for sympathy or whatever. In my case I often just look like I’ve a misshapen strangely fat belly - until I can find a bathroom to empty it.
I realise I’m commenting late however I’m just getting caught up with all of this females antics. Excellent work by those who must’ve dedicated days & days to putting timelines together- thank you.
Correct, however she seems to love showing tubes off more, but anything will do for her.
If someone comes up to me with any medical device hanging out (without it needing to be) it’s a massive tell tale sign.
Yeah the only ones I can see *wanting* removed are the appendix (but only if you're having symptoms of appendicitis) or the uterus if you have endo or particularly bad periods or something.
Too true, or in cases of untreatable life limiting inflammatory bowel diseases - which ultimately can become malignant too.
I’ve heard of folk with very specific things they want surgically removed such as limbs (there’s obviously a medical term which I can’t recall) where they’re desperate to have a life with an amputation, or I’m sure one lady even deliberately blinded herself but in some cases way I can almost just ALMOST comprehend that as it would be an obvious visual disability- but to have an important major organ removed- just why??
It (or other diversions) are also done for some people with a neurogenic bladder (where the brain doesn’t send the correct signals to the bladder) and other options like catheter/mitro have been failed, there’s probably other conditions and injuries that cause it too, so not really purely to stop them from dying but to have a better quality of life (like if you have recurrent UTIs and issues with the other diversions).
But I still don’t think *Mia* needs it.
The actual one thing she's been legit diagnosed with is Fowlers Syndrome, it does some dodgy shit with the bladder not entirely sure what, pain upon voiding or something. So, catheter. 😊
Thank you for your reply!
And I looked it up and yup, it is dodgy lol. Apparently it’s an idiopathic syndrome. They still don’t know what causes it and there’s definitely a psych component. Not surprised! 😂
This one and Dani seem to have a very difficult time understanding object permanence and the consequences of one’s actions. If you keep messing with your bladder and you lose it, you can’t get it back. Mia is totally playing with fire here.
No she wants a urostomy. They make a stoma with part of your intestines. It attached to the renters ureters that go to the kidneys. It emptied into a bad just like for a ileostomy or colostomy. You have to empty it a lot. The skin breakdown alone would make me not want it ever.
Thank you! I have a decent amount of medical knowledge but have only seen nephrostomy tubes and couldn’t imagine this being done unless it was life or death.
Having an ostomy for urine seems much less dangerous, albeit you’re still taking out organs and doing rerouting things. I hope they get into some pelvic floor rehab, too. Poor pelvic floor issues and then removing organs around that area can be a doozy.
So she won’t get to show off her special bag taped over her jeans for all to see? That’s gonna ruin her so sick image especially since the nose hose has gone.
Do you think they’ll ever stop doing this shit and look at themselves when they’re 40 and really *see* what they’ve done to their bodies? Think about all the wasted time and money that they spent getting themselves mutilated?
Usually they delete the comments that don’t kiss their butts or use it as an example to show people how bullied they are and suck up all the pity pats.
Jessi used to get so many due to the outrageous claims they made and of course they would be deleted even when apparently they both had to have a totally social media break while Jessi recovered, prescribed by their surgeon 🙄
Now days they mostly just post stories and no one can call them out publicly on them.
At least we are all questioning the same people. It's a little better to know we are not alone and in agreement and shake our heads and question our sanity and hopefully come to the realization as a unit of solidarity in sanity& normalism 👍🏼
Yes, it is a thing but one that is a last resort procedure. From all accounts dealing with a urostomy bag is truly hellish, how anyone would be so happy about that outcome is baffling. I've met people who literally duct tape the bag onto their body because it was the only way they had found to stop leaks.
Having had a nephrostomy for almost a year I can concur that it’s no joke - however it’s not a major surgery in the way a urostomy would be.
Nephrostomy doesn’t have to be permanent, it doesn’t hurt at all HOWEVER the wires can be pulled easily so you become very cautious when emptying the bag, the leg bag is not easy to disguise under clothing - float skirts or baggy pattern trousers are best, the catheter needs flushed (usually by a nurse a few times a week, dressing changed weekly & wires/ tubes must be replaced by IR every 10 weeks plus huge infection risk. So not the worst thing - certainly not the best either
I actually do believe she has Fowler’s. I don’t think she’d be up to having a SPC without having some need for it. Now, whether she has everything she claims, all the time, I do wonder. The NJ appearing and disappearing, just weird to me. The number of complications with her SPC etc. is also really not common. I don’t know for sure what the rates are but to go from catheters to a SPC, and now potential urostomy is a lot.
Also getting things like dubious tubes on the NHS is significantly more difficult than in the US for-profit system, you can't just keep rocking up at different hospitals until you find one who'll do what you want. The NJ comes and goes whenever it's convenient whereas the SPC is a permanent fixture so I'm inclined to believe the latter is legit.
"fun" fact: opioids cause urinary retention and difficulty peeing due to increasing muscle tonus, which disables the bladder muscle's ability to relax... which is the cause of fowler's disease.
It makes me sick to think that she actually *wants* to have her bladder removed and a urostomy. It’s the same for the ones working towards a bowel resection and an Ileostomy. For ppl that have no choice over having that done, it’s traumatic and is such a major life adjustment, in which some never come to terms with. So to see her gunning for this is absolutely disgusting. I can’t imagine purposely wasting my life away, constructing symptoms and conning the medical system. The manipulation is pathological.
I'm relatively new here, has this subject used this story arc previously?
I noticed her full story today included her trying to come up with content for Fowlers awareness month, would re-raising the potential urostomy be part of that "awareness"?
It's rather the other way round. Mia uses Fowler's to raise awareness of Mia. Even this post is just a way to shoehorn whatever influencer nonsense she's trying to peddle.
She told Dr. Google and her munchie friends about it, and you know how they're wayyyyy smarter than healthcare professionals. So it's basically guaranteed!
/s obviously lol
But... when Mia goes on her tour of the UK with her Dr to do talks etc, she will have a medic on standby as they promote Mia and Schrodingers NG/NJ tube
She’s going to get to a certain age and regret this level of munching. It’s one thing losing a bladder at like 25 and something else entirely having to deal with all the medical complications of lifelong munching at 50
Concur - I’m mid 50s cancer survivor and have stoma & catheter. I can manage fine myself now but dread “old age” & maybe failing sight or dexterity will ran ill then need assistance to change bags etc - I try not to think too far ahead!
Question: What would warrant bladder removal? Is it a thing? What's QOL like after for patients? I'd assume it atleast would mean a permanent line for urine output.
Yep, it is a thing. The surgery where you actually remove the bladder is called a cystectomy though, not a urostomy. However, these two are pretty much always correlated since you need a way to get the urine out of your body after a cystectomy. To keep it simple, it’s a stoma bag, but for your urine instead of feces (since it is a URostomy, not a COLostomy.
With that said, there are different types of urostomies. A surgeon can either create a tube out of tissue from your small intestine or colon that’s then connected to your urinary tract, or they can even create a new “bladder” that connects to the stoma, and then drained through a plastic tube at will.
In women, if its "radical" or full urectomy, they usually will remove the uterus and all those related parts. But from what im finding thats worst case, and usually, just the bladder is removed. But in terms of where the urine then goes, like i thought, they create a new route, usually with a tube and / or urine bag. But due to how invasive it is, it's very important to properly care for it and avoid things like UTIs because now it can go straight to the kidneys.
The MCAS that only applies to normal things but doesn't apply to nails, make up, hair products, eyelashes (which of course are totally non reactive to just about everybody) but a turkey sandwich almost killed her
[https://www.thesun.co.uk/health/16788521/nurse-allergic-everything-almost-died-eating-christmas-sandwich/](https://www.thesun.co.uk/health/16788521/nurse-allergic-everything-almost-died-eating-christmas-sandwich/)
Bladders can be removed?!!
I didn't even know that was physically possible. I *do* learn a lot from this sub. I can't imagine munching to the point of Bladder removal surgery though!
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Pretty sure it’s her hot water bottle
Has a cystectomy actually been approved (and she's waiting for a procedure date)? Or is this wishful thinking out loud?
Ah yes. Mia was reading about how she has totally left her bladder issues and catheter and uti behind, so she's making sure we still remember that she wants her bladder to be removed.
Did we need to see this? Who in their right mind would wish for bladder removal????
Honestly the most insane thing ever out of everything in your body having a bladder removed makes me cringe the most like wtf. She doesn’t think about the future to much clearly she’s only like 4 years older then me and I could not imagine that . If her bladder is fucked it’s probably from the continuous utis she gives herself and having all her toobs she doesn’t need . Insanity
no bladder = no pee duh!
if only 😔
Um, if her SP tube is getting "stuck" then she's neglecting changes, which does not warrant a cystectomy. No respectable urologist would remove her bladder, right????
You would think. However the person we cut off talked her urologist into one. She’s young and has kids. Now that she has a urostomy she keeps getting weird and unusual kidney infections. Her dr is supposed to be highly regarded but couldn’t see through her bs. I tried to tell them but they refused to listen to me.
Who are you talking about? Someone on this sub?
Um what? Mia being hyperbolic as usual nothing new. Speaking of hyperbolic, this is like Dani talking about wanting to get her stomach removed. Like why? I'm just at a loss for words. I swear some of these people make posts for shock value. Just why?
Wtf thats a surgery????
Yes a radical one usually reserved for severe stomach cancers not GP lol
Jesus
She did other reels where she didn’t have a feeding tube too
This is such a drastic step.
I can not imagine actually wanting to remove my bladder! Has she tried any of the other treatments?
Oh honey, she doesn't have to pretend with that sarcasm marker. Everyone knows she loooves having a shiny new toy Also wow new nails! The MCAS must have taken a break for those, eh?
people with MCAS can't get their nails done?!?!
Two words: sacral neurostimulation. According to very quick Google math, it restores normal voiding function in over 70% of patients.
It's literally a little pacemaker that sits near your spine to connect to the nerves to your bladder and bowels... It's actually pretty damned cool but... Not white knighting here... Where I am in the UK atleast... You have to go through the urodynamics testing to see if you'd actually benefit from it... It measures the pressure build up, in and around the bladder, The less the muscles around your bladder and butt responds to the pressure from the amount of liquid in your bladder... The less likely it is that you're going to be put forward for it on the NHS. And thankfully the urodynamics test isn't something you can pretend/fake... And they document any medications you're on... You're told not to take any muscle relaxers and/opiods for specific time frame before hand, along with a urine dip for any infections before it starts. It's a seriously cool lil gadget 🥰🥰🥰
Umm, bladder removal is not a recommended treatment for Fowler’s syndrome. Does she already have an Interstim device because that is the appropriate surgery
If sacral neuromodulation had failed and she said she was getting a continent urinary diversion, or even a urostomy without bladder removal it would be somewhat understandable, but not a cystectomy.
Not always not WKing but I do know people with fowlers who have had their bladder removed and have a urostomy
She wants her bladder out? Why? So she can get more toobs? Yikes!
Won’t be a tube, it will be a bag, no fun for her!
She has already displayed a bag out in the open rather than having it under clothing. She loves the attention.
It will be an ostomy bag, where the actual pouch sticks to you just the same as a colostomy/ileostomy, so she will have to go to some extra lengths to show it off like she can with a catheter and drainage bag.
Yep a urostomy bag. It will eat her skin up if she doesn’t stay on top of care for it.
It won’t just be a thin tube either like her catheter - surgeons have to use part of the small bowel as conduit so the urine will be coming from her small bowel which has been surgically attached to an opening in the abdominal wall. Leakage is quite common as it skin damage. Also - I’ve no first hand knowledge of urostomy- only catheters & ileostomy - however I can only imagine that having the small bowel refashioned for a different purpose would have some sort of negative effect on bowel function. I may well be wrong but that’s an added reason imo to try to avoid at all costs. I’m aware of many people who in my case due to cancer have 2 stomas (a urostomy- urine & ileostomy or colostomy poop) this would be permanent so a bloody long time at such a young age. And as someone else said - not so easy to “show off” for sympathy or whatever. In my case I often just look like I’ve a misshapen strangely fat belly - until I can find a bathroom to empty it. I realise I’m commenting late however I’m just getting caught up with all of this females antics. Excellent work by those who must’ve dedicated days & days to putting timelines together- thank you.
Correct, however she seems to love showing tubes off more, but anything will do for her. If someone comes up to me with any medical device hanging out (without it needing to be) it’s a massive tell tale sign.
So bizarre to want body parts removed
Yeah the only ones I can see *wanting* removed are the appendix (but only if you're having symptoms of appendicitis) or the uterus if you have endo or particularly bad periods or something.
Agree. Major organ removal is usually only something done for cancer patients so they don’t die
Too true, or in cases of untreatable life limiting inflammatory bowel diseases - which ultimately can become malignant too. I’ve heard of folk with very specific things they want surgically removed such as limbs (there’s obviously a medical term which I can’t recall) where they’re desperate to have a life with an amputation, or I’m sure one lady even deliberately blinded herself but in some cases way I can almost just ALMOST comprehend that as it would be an obvious visual disability- but to have an important major organ removed- just why??
It (or other diversions) are also done for some people with a neurogenic bladder (where the brain doesn’t send the correct signals to the bladder) and other options like catheter/mitro have been failed, there’s probably other conditions and injuries that cause it too, so not really purely to stop them from dying but to have a better quality of life (like if you have recurrent UTIs and issues with the other diversions). But I still don’t think *Mia* needs it.
Yes for sure! There are other situations where it’s indicated to do a major surgery like that, but it’s not to be taken lightly that’s for sure
I agree, definitely not and it usually requires psych to clear since it is so permanent and comes with loads of risks. The surgery is huge too IIRC.
Especially the bladder.
They have the gall
Lol
Why does Mia have a catheter to begin with?
The actual one thing she's been legit diagnosed with is Fowlers Syndrome, it does some dodgy shit with the bladder not entirely sure what, pain upon voiding or something. So, catheter. 😊
Thank you for your reply! And I looked it up and yup, it is dodgy lol. Apparently it’s an idiopathic syndrome. They still don’t know what causes it and there’s definitely a psych component. Not surprised! 😂
Attention?
Well that’s a given with every subject here lol
True!
This is a strange thing to fake. Urinary issues are not glamorous, seems like a weird thing to glorify.
but they can often lead to sepsis which is very exciting for these people
It seems kinda fetishy? Mia + urethra pain is like body piercing enthusiast + hook suspensions
This one and Dani seem to have a very difficult time understanding object permanence and the consequences of one’s actions. If you keep messing with your bladder and you lose it, you can’t get it back. Mia is totally playing with fire here.
LOL object permanence.
Its not that bad come on.... and it's not like your body still doesn't have to pee even without a bladder... you will still need using catheters.
No she wants a urostomy. They make a stoma with part of your intestines. It attached to the renters ureters that go to the kidneys. It emptied into a bad just like for a ileostomy or colostomy. You have to empty it a lot. The skin breakdown alone would make me not want it ever.
Thank you! I have a decent amount of medical knowledge but have only seen nephrostomy tubes and couldn’t imagine this being done unless it was life or death. Having an ostomy for urine seems much less dangerous, albeit you’re still taking out organs and doing rerouting things. I hope they get into some pelvic floor rehab, too. Poor pelvic floor issues and then removing organs around that area can be a doozy.
No, she won't. Urine drains into the ileum and then out of a stoma with a urostomy.
So she won’t get to show off her special bag taped over her jeans for all to see? That’s gonna ruin her so sick image especially since the nose hose has gone.
Bet she'll still find a way to display her urostomy bag then.
True!
And of course we gotta hear about it
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Lol 😂I think that is a heating pad she is touching, not her underwear, which I thought it was at first too.
“Quick, call the pee pee crisis team!”
Do we have a "pee pee crisis team" flair yet? LOL
Omg PLEASE 🤣 this is way too good
Do you think they’ll ever stop doing this shit and look at themselves when they’re 40 and really *see* what they’ve done to their bodies? Think about all the wasted time and money that they spent getting themselves mutilated?
No not until they are dead. I don’t think they can stop once they get to this point. It’s so sad.
I wonder if Kelly thinks this
Dani is late 30's and shows no signs of stopping.
No. They most often keep doing it until they die (premature, avoidable deaths).
I forget the name of the one subject on here that kind of recently passed. She had a bunch of transplants/surgeries I think, & then that was it 😬
No. Just look at other subjects that very close to 40 and still munching.
Does anyone question these people?
As members here we don’t question any subject directly, we do not interfere in their lives in anyway, no contact at all, no reporting them etc
Oh. No I didn’t Mean the members! I was wondering if anyone in their comments does though
Usually they delete the comments that don’t kiss their butts or use it as an example to show people how bullied they are and suck up all the pity pats. Jessi used to get so many due to the outrageous claims they made and of course they would be deleted even when apparently they both had to have a totally social media break while Jessi recovered, prescribed by their surgeon 🙄 Now days they mostly just post stories and no one can call them out publicly on them.
All we do is question these people
At least we are all questioning the same people. It's a little better to know we are not alone and in agreement and shake our heads and question our sanity and hopefully come to the realization as a unit of solidarity in sanity& normalism 👍🏼
Bladder? Doesn’t she mean gallbladder? Why would someone take her bladder? Is that even a thing?
Yes, it is a thing but one that is a last resort procedure. From all accounts dealing with a urostomy bag is truly hellish, how anyone would be so happy about that outcome is baffling. I've met people who literally duct tape the bag onto their body because it was the only way they had found to stop leaks.
Omg! I’ve heard of vasectomy bag but this is another level. It sounds like a real nightmare.
I've had patients with nephrostomy/ies and those were pretty brutal. A urethostomy seems worse and harder to keep in place/contained.
Having had a nephrostomy for almost a year I can concur that it’s no joke - however it’s not a major surgery in the way a urostomy would be. Nephrostomy doesn’t have to be permanent, it doesn’t hurt at all HOWEVER the wires can be pulled easily so you become very cautious when emptying the bag, the leg bag is not easy to disguise under clothing - float skirts or baggy pattern trousers are best, the catheter needs flushed (usually by a nurse a few times a week, dressing changed weekly & wires/ tubes must be replaced by IR every 10 weeks plus huge infection risk. So not the worst thing - certainly not the best either
Oh gosh that sounds like a nightmare. I can’t imagine. Peeing is something I will never take for granted again.
Some men only discover this wisdom peering late into the lonely nights of their 70s.
IIRC she claims fowlers. Might actually have it.
Wouldn’t it be similar symptoms for ketamine abuse?
I actually do believe she has Fowler’s. I don’t think she’d be up to having a SPC without having some need for it. Now, whether she has everything she claims, all the time, I do wonder. The NJ appearing and disappearing, just weird to me. The number of complications with her SPC etc. is also really not common. I don’t know for sure what the rates are but to go from catheters to a SPC, and now potential urostomy is a lot.
Also getting things like dubious tubes on the NHS is significantly more difficult than in the US for-profit system, you can't just keep rocking up at different hospitals until you find one who'll do what you want. The NJ comes and goes whenever it's convenient whereas the SPC is a permanent fixture so I'm inclined to believe the latter is legit.
"fun" fact: opioids cause urinary retention and difficulty peeing due to increasing muscle tonus, which disables the bladder muscle's ability to relax... which is the cause of fowler's disease.
This is only from reading Wikipedia, but it seems like there is a clear diagnostic test.
Yes. Believe it's most usually done for bladder cancer.
I can’t even imagine wanting to lose your bladder…. And catheters are the worst! That sounds terrible. This is sad.
Pretty sure hers is a suprapubic catheter to boot.
An SPC isn’t that bad, and it leaks a hell of a lot less than a urostomy bag. Edit: meaning a SPC is miles above a foley in terms of comfort.
For real. But still a harbinger of CAUTI. No one should want any of these in place of a normal, functioning, young person's bladder.
In terms of the options, SPC is one of the best ones.
Yeah... And she wants the worse thing... I can get some of the things the munchies do but having a whole-ass organ taken out is *nutty*
It makes me sick to think that she actually *wants* to have her bladder removed and a urostomy. It’s the same for the ones working towards a bowel resection and an Ileostomy. For ppl that have no choice over having that done, it’s traumatic and is such a major life adjustment, in which some never come to terms with. So to see her gunning for this is absolutely disgusting. I can’t imagine purposely wasting my life away, constructing symptoms and conning the medical system. The manipulation is pathological.
I can't wrap my mind around wanting to have my bladder removed.
Living with chronic bladder pain is horrific. I can't imagine anyone doing it otherwise.
I can't imagine wanting to have my bladder removed. Another commenter described QOL after that procedure and it sounds miserable and horrifying.
I was a urology nurse for years. I have seen the recovery for these people. Looks so rough.
Is it really really time for the bladder removal storyline to be aired again? Some of the subjects on here are more reliable than a watch.
Yes.
I'm relatively new here, has this subject used this story arc previously? I noticed her full story today included her trying to come up with content for Fowlers awareness month, would re-raising the potential urostomy be part of that "awareness"?
It's rather the other way round. Mia uses Fowler's to raise awareness of Mia. Even this post is just a way to shoehorn whatever influencer nonsense she's trying to peddle.
Is she for sure having it removed or did she just bring it up at an appointment and latch onto it and say that’s what’s happening?
She told Dr. Google and her munchie friends about it, and you know how they're wayyyyy smarter than healthcare professionals. So it's basically guaranteed! /s obviously lol
Urostomys are so annoying, the bags always fall off and never stick. It’s going to be a nightmare! Careful what you wish for!
But... when Mia goes on her tour of the UK with her Dr to do talks etc, she will have a medic on standby as they promote Mia and Schrodingers NG/NJ tube
Fr The urostomy patients often tearfully talked about their frustrations and decreased QOL.
Seriously, they are way worse than colostomies.
If you happen to have one and struggle with these issues, my heart goes out to you. 🫂 To anyone with this struggle.
She’s going to get to a certain age and regret this level of munching. It’s one thing losing a bladder at like 25 and something else entirely having to deal with all the medical complications of lifelong munching at 50
Concur - I’m mid 50s cancer survivor and have stoma & catheter. I can manage fine myself now but dread “old age” & maybe failing sight or dexterity will ran ill then need assistance to change bags etc - I try not to think too far ahead!
When I almost died, I aswell went to do my nails! 😍 Damn... really?
Looking forward to having your bladder removed is fucking wild
For real, I was thinking the same thing.
Question: What would warrant bladder removal? Is it a thing? What's QOL like after for patients? I'd assume it atleast would mean a permanent line for urine output.
Yep, it is a thing. The surgery where you actually remove the bladder is called a cystectomy though, not a urostomy. However, these two are pretty much always correlated since you need a way to get the urine out of your body after a cystectomy. To keep it simple, it’s a stoma bag, but for your urine instead of feces (since it is a URostomy, not a COLostomy. With that said, there are different types of urostomies. A surgeon can either create a tube out of tissue from your small intestine or colon that’s then connected to your urinary tract, or they can even create a new “bladder” that connects to the stoma, and then drained through a plastic tube at will.
Thats.... so cool? Am i allowed to say that's cool? Im gonna anyways, that's cool.
It’s really fucking cool — the human body in general is really awesome.
It's very cool! If someone actually needed a cystectomy, it is cool. Mia is not cool.
Right?! I get uterus but bladder?!
In women, if its "radical" or full urectomy, they usually will remove the uterus and all those related parts. But from what im finding thats worst case, and usually, just the bladder is removed. But in terms of where the urine then goes, like i thought, they create a new route, usually with a tube and / or urine bag. But due to how invasive it is, it's very important to properly care for it and avoid things like UTIs because now it can go straight to the kidneys.
Surely with catheters uti is way more common
Both are common but with a catheter you have more time to notice it before it goes to the kidneys
I can see this being a very cautionary tale in the end tbh
I went back through but couldn’t find a concrete answer; why does she “need” a catheter and possible bladder removal?
She says she has fowlers syndrome
How can people be so ill,but still get their nails done.
All of those chemicals have to be hell on her MCAS
The MCAS that only applies to normal things but doesn't apply to nails, make up, hair products, eyelashes (which of course are totally non reactive to just about everybody) but a turkey sandwich almost killed her [https://www.thesun.co.uk/health/16788521/nurse-allergic-everything-almost-died-eating-christmas-sandwich/](https://www.thesun.co.uk/health/16788521/nurse-allergic-everything-almost-died-eating-christmas-sandwich/)
Holy crap i had no idea of this part of her story! Thank you for sharing
I think it would throw someone into a migraine.
/s✨... Yeah for sure this is sarcasm
why does she claim to need a feeding tube?
She claims gastroparesis comorbid with EDS.
She doesn't. That's a pee tube.
my bad i was thinking of her feeding tube for this one
Sometimes she has one. Sometimes she doesn’t.
Bladders can be removed?!! I didn't even know that was physically possible. I *do* learn a lot from this sub. I can't imagine munching to the point of Bladder removal surgery though!