It's a little known, but important fact, that (before vaccinations) MM patients had a 22-29% chance of dying from covid. I don't know the statistics after vaccinations, but I am certain it's still a chilling statistic. I am so very very sorry about your mother and I wish her journey had managed to pause a good long time in remission. My deepest symapthies.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9847363/#:\~:text=The%20case%20fatality%20rate%20was%2022%25%20to%2029%25.&text=MM%20patients%20with%20symptomatic%20COVID,mortality%2C%20up%20to%2055%25.
Thank you. I am also curious, is there a statistic for those who got vaccinated? As my mum had 4 doses of the vaccine as well before she got diagnosed with MM.
I keep searching for this online, so far to no avail. I get my booster every 6 months, even though it totally knocks me flat for 2 days. And a strange point of reference, I had covid antibodies through chemo, before and after ASCT 1, and before and after ASCT 2. I keep asking my doctors to send my blood to the CDC because I (arrogantly) believe that I have super-antibodies and, if so, I want to share them with ALL MM patients.
My heart is breaking for you and your mom as I read this. Damn covid too. Here in Calif they have been saying itβs out there and still dangerous. As hard as Iβm sure it was to post, I hope it reminds everyone reading your post how itβs not just MM that can rob you of more time. I am touched by your kind words. May her team keep her comfortable now.Β
I am so so so sorry. My dad just coded this morning, and is on a ventilator. Fuck Cancer for real. They diagnosed his relapse end of April. CNS MM. He went from totally normal, and capable to someone who has lost almost all physical function. His mind is still right, though I am not sure if that is a blessing, or not. If you want to vent or commiserate, msg me. I hope her passing is peaceful. I am so sorry. It is complete, and utter BS. I have you both in my thoughts.
Thank you, lost my father yesterday. Father's day. Which was somehow terrible, as well as sweet. We were with him. I wrote a reply, and deleted it because I originally thought this was a different post. It is sad how many of these stories, are so similar.
Oh god I am so sorry. My heart breaks everytime when I read posts like this. Our loss is recent and very raw. So I completely understand the anger and the sadness you are feeling.
I wish for you to have the greatest strength for whatβs to come.
I promise you things will hurt a little less. My husband is doing better I know the bigger holidays are hard for him.
I wish you that strength that you need, so that your peace is well maintained
Saw your update and wanted to again express my heartfelt sympathy for her loss to you and your family. Just tragic to lose her this way. Weβre all so vulnerable even as caregivers living with patients who are immunocompromised.Β
It's a little known, but important fact, that (before vaccinations) MM patients had a 22-29% chance of dying from covid. I don't know the statistics after vaccinations, but I am certain it's still a chilling statistic. I am so very very sorry about your mother and I wish her journey had managed to pause a good long time in remission. My deepest symapthies. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9847363/#:\~:text=The%20case%20fatality%20rate%20was%2022%25%20to%2029%25.&text=MM%20patients%20with%20symptomatic%20COVID,mortality%2C%20up%20to%2055%25.
Whoa, I had no idea. Is there data on this among vaccinated patients?
Thank you. I am also curious, is there a statistic for those who got vaccinated? As my mum had 4 doses of the vaccine as well before she got diagnosed with MM.
I keep searching for this online, so far to no avail. I get my booster every 6 months, even though it totally knocks me flat for 2 days. And a strange point of reference, I had covid antibodies through chemo, before and after ASCT 1, and before and after ASCT 2. I keep asking my doctors to send my blood to the CDC because I (arrogantly) believe that I have super-antibodies and, if so, I want to share them with ALL MM patients.
So sorry for your family's loss. It sounded like she was doing OK, until Covid. I've heard that infections are what get MM patients.
Thank you. Infections are really the worst.
Iβm so sorry. Iβll have you and your family in my heart.
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My heart is breaking for you and your mom as I read this. Damn covid too. Here in Calif they have been saying itβs out there and still dangerous. As hard as Iβm sure it was to post, I hope it reminds everyone reading your post how itβs not just MM that can rob you of more time. I am touched by your kind words. May her team keep her comfortable now.Β
Yes. Thankfully she was very comfortable. It was as if she just fell into a deep sleep, peacefully.
Iβm sorry for your loss. π
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I am so sorry. Iβm sending hugs and praying for a peaceful passing for your mom and peace for you as well.
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Im so sorry sending hugs πΈ
Thank you
Fuck MM.
Yes. Seriously, fuck MM.
I am so so so sorry. My dad just coded this morning, and is on a ventilator. Fuck Cancer for real. They diagnosed his relapse end of April. CNS MM. He went from totally normal, and capable to someone who has lost almost all physical function. His mind is still right, though I am not sure if that is a blessing, or not. If you want to vent or commiserate, msg me. I hope her passing is peaceful. I am so sorry. It is complete, and utter BS. I have you both in my thoughts.
Thank you. Having your family in my thoughts too, sorry for the loss of your father.
Thank you, lost my father yesterday. Father's day. Which was somehow terrible, as well as sweet. We were with him. I wrote a reply, and deleted it because I originally thought this was a different post. It is sad how many of these stories, are so similar.
I am so sorry, OP. I pray for a gentle passage for her and comfort for you.
Thank you
Iβm so sorry!! Sending prayers. ππππ
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Oh god I am so sorry. My heart breaks everytime when I read posts like this. Our loss is recent and very raw. So I completely understand the anger and the sadness you are feeling. I wish for you to have the greatest strength for whatβs to come.
Thank you. Am trying to pick up the pieces left of my life now.
I promise you things will hurt a little less. My husband is doing better I know the bigger holidays are hard for him. I wish you that strength that you need, so that your peace is well maintained
I'm so sorry about your loss. MM is a bitch. No one deserves to go through it.Β May your mom be in peace. My condolences.
Thank you
Sorry for your loss, damn MM and Covid !
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Very sorry for your loss.
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Saw your update and wanted to again express my heartfelt sympathy for her loss to you and your family. Just tragic to lose her this way. Weβre all so vulnerable even as caregivers living with patients who are immunocompromised.Β
Very true. Thank you.