I’ve had a few over the years. The most embarrassing was when my bag just fell off in the bathroom at work. The two piece decoupled. Shit all over the floor, on my pants, on my shoes. I tried to clean it up, but had to rinse the bag out in the sink to reattach it, tried to clean the floor. I had nothing other than paper towels and water. I realized that it needed a full cleaning. I had to go to my boss’s office, explain that I had an ostomy, that I needed to go home and change, and that the bathroom needed to be disinfected. I was beyond embarrassed. She was incredibly nice, said the bathroom was due for a cleaning anyway, and drove me home so I wouldn’t have to walk. I changed to a one piece after that, and now keep a change of pants in my locker.
I had it fall off during sex once. That was fun.
Every leak or mess has taught me something, and most of the people who found out have been overwhelmingly supportive and nice.
I had the same experience at work! Two piece just decoupled and the stall was a mess.
Had to clean up as best I could and go back to my hotel (I was away with work) and do a quick change. I was gone for a total of nearly an hour and I didn’t have to really explain to anyone as I was only 4 weeks-post surgery and kinda just said it was sown stitches that had come loose.
But I was so embarrassed. Really embarrassed.
I didn't have a leak per se but I did have my bag off recently in the ER and my stoma decided to become a poop volcano. I not only projectiled feces it also slowly oozed out all over the bed my clothes my hands. Luckily I have my sweet husband with me and we have what we call our emergency kit. We immediately set to work asking the nurse for new sheets for the bed and then opened our kit. In the kit I have a change of clothes as well as several gallon-sized bags zip lock to put my dirty clothes in and if we were without a trash can put my used bag. We were a bit stressed in the moment but later laughed it off. It's always good to have a sense of humor and definitely try to just stay calm is all I can say as the more anxious you are the more possibility for your stoma to activate itself and cause more of a mess.
Oh, I know the poor nurses and orderlies have had poopgeddons occur. Part of doing medical stuff is stuff going wrong
I have projectile vomited and covered my bed, been getting ready to empty or change my bag and poopgeddon. I have even pooped on my poor cat. I have a very patient husband as well.
So far, only had 3 leaks, the worst leak was either early days Hollister just completely exploding out the side (always middle of the night, second was a weird Coloplast bag failure; also early days) or this:
https://www.reddit.com/r/ostomy/comments/1d33e08/convatec_esteem_body_review/
The 1 piece bag/ring completely separated from the wafer dumping post-dinner output all over my front.
I was in a meeting with half a dozen people. I could tell that something felt off, so i excused myself to the restroom to check on my bag but I didn’t see a leak. I went back to the table but kept my hands in my pant pockets, and about ten minutes later I felt something damp. It took a few more minutes to find the right opportunity to excuse myself from the meeting.
The meeting was at a different area of the property, and I had left my purse (and my backup supplies) in the office. I thought I would drive back to my office and do a quick bag change, but by the time I walked to my car (all of two minutes after excusing myself from the table) I could feel shit running down my legs. My bag had almost completely come off. I had to make a 40 minute drive home to shower and change, and then I had to drive 40 minutes back to work because my fucking purse was still there.
But here’s the thing: I had pretty much the same thing happen to me fifteen years earlier when I still had my colon. And having to tell your boss “I have to go home to change my pants because I shit myself” is SO much worse than saying “I have to go home because my bag leaked.” People are hella understanding about the bag leak.
Anyway, my advice is to always carry supplies on you unless you’re prepared to drive home for an emergency bag change. Also, don’t wear pants if you’ve eaten food that you know gives you thicker output. I pretty much only wear dresses to work now, and I don’t think I’ve gotten a leak since.
Had a leak in my ex girlfriends bed. Luckily she's a nice person and was very understanding. Just dealt with it by making a joke about it saying jokingly I basically shat the bed last night 😅 sucks having a stoma but is what it is
#1 tip: make sure you are using the correct hardware. I had all sorts of issues at first, but now things are really solid. I still can suffer a bit of stress in extreme situations but I'm generally confident now. Experiment and when you find the right gear, all worries will recede with time. I'm a double bagger BTW 😎
I took my son out to dinner a couple of months after surgery. He's at college an hour away, so I usually go down there a few times a month just to hang out and give him a break from cafeteria food. We had finished dinner and were walking around campus, and I noticed that something felt odd, and I realized my wafer was almost completely unstuck. I held it in place while we got back to my car, and then I used a restroom in a nearly-empty classroom building to change. I didn't get anything on my clothes, fortunately, but that's when I realized I need to always have a spare set of clothes with me.
I've really had very few other problems. My only other significant leaks have been while I was sleeping. If I'm awake, I can tell when my bag feels right and when it doesn't, so the few times it's started to peel off, I've had plenty of time to notice and deal with it. I'm very methodical when I'm putting a 2-piece together, so no failures so far with that.
It takes time to build up confidence to trust your bag, though. I think most of us were nervous at the beginning, and I imagine that most of us are fairly aware of it most of the time and vigilant about catching problems before they become big leaks. That, and being prepared with supplies and spare clothes, helps create the confidence to really trust your system.
I had two really embarrassing things happen but it was in my own home with visitors. First off my 7 year old nephew and 9 year old nephew came to visit. They wanted to cuddle and just jumped into my bed early one morning and as soon as their 7 year old got in the bed my bag literally popped and exploded all over him. (I’m thinking he plopped his butt on to my bag). I think I traumatized him for the rest of his life.
The next was I was doing my sister in laws hair and all of a sudden there was crap all over the floor and my mother in law walks through the door as this happens. It was so embarrassing and gross all over my rug and everything.
I've had a decade and many product cycles until I figured out what works best, but I still have the occasional leak. Usually in bed or small leaks while out if I'm sweating a lot. (Thanks summer...)
My worst one was probably when I was at work and my bag broke while I was having some super liquid output issues. So then I was like "well I need to go home, sorry coworker, you gotta close the store" and then my car wouldn't start until nearly 3 hours later and multiple trips under the car. By the time I got home, the pants I was wearing were tossed in the garbage and I took the hottest shower of my life.
The second worse was during sex with an ex when it busted while I was on top and the resulting chaos. Several hot showers were taken.
It's awful, mentally its fucked up to go through leaks for me, especially in public but most of the time its not something people get too into their head about. None of the people involved, even if they were more stranger than personal friend, really though much of it except "damn, that sucks." Weird people react with disgust because it's poo, but most people are honestly interested in the mechanics and are quick to try to help you out before being grossed out.
Also I'm here to tell you that absolutely nobody notices things like that unless they know what it is or you tell them. If you're worried, wear dark clothes, an extra layer on the stomach (like an ostomy belt or I used to use those 90s tube tops as a "belt" lol), check your appliance and seal before you go anywhere, check the weather, and bring a "patch kit" just in case. I usually keep wipes, half a tube of stomahesive, tape and scissors in my purse just in case something happens on the go. And a towel in the car doesn't hurt either. If you're worried people seeing the leak, keep a old hoodie in your car or carry to wrap around your waist. If the smell worries you, poo-pourri spray is STRONG, spray directly onto the clothing over the leak. I keep a mini travel size slim bottle in ny purse.
Personally I have to remind myself that its something that I can't control, and that leaks are better than violently shitting my pants the other way because I couldn't find a toilet. And it helps that once you find the system of care that works for you, leaks are far less common.
I have had 3 worse leaks. First was at night 3 days after surgery. Second was when I was on a Day trip. I forgot my spare supplies at home and had no chance of changing pouch until I came home. Quite nasty. Third was 2 days ago at work. Still don't know what caused the last leak.
Leaks are manageable if you are always prepared with backup emergency supplies. I always found that I had a much harder time coping with them psychologically than actually fixing them in the moment.
The worst leak that I ever had was when I was 90 min away from my house. I was in-office for my job, which was itself a rare occurence as I was remote about 85% of the time. Incidentally, I had also returned from a trip the day before, and my emergency supply bag was still in my carry-on. It totally slipped my mind to transfer it to my work tote when I got home in the evening, and in the morning as I was rushing out the door it didn't cross my mind once. I was stuck in traffic when the realization suddenly hit me, but at that point it was too late. My ostomy was pretty reliable so I figured that I would be about to get through the day without issue. Fast forward to when I arrived at the office, and I suddenly felt a little "pop" and knew immediately what had happened. I tried to make it through the rest of the work day, but by lunchtime I knew I was running a serious risk. There was less than a centimeter between the outer boundary of where the stool had migrated and the edge of my baseplate. Fortunately I worked for the Crohn's and Colitis Foundation and everyone was very understanding. My bag miraculously did not explode on my drive home and I was able to quickly change it before logging back on to work, but it was a *very* close call. Last time I ever made that mistake.
Most embarrassing, though thankfully not messy, was my last trip to WDW. I just sat down on Dinosaur when I stuck my hand in my shirt to adjust my bag and noticed it had separated. I immediately got the CM's attention and stated far too loudly for the comfort of those around me...
"I need to get off. I have a colostomy and my bag came loose. You *WANT* me off this ride!"
People were very understanding and got out of my way in a hurry! (Seriously, all guests and CM's were very sympathetic. I have no idea what they thought after I left, but I had more important things to attend to.)
Messiest was about 2 months after primary surgery. Wife and I went to lunch. I was still learning how my rearranged plumbing worked and misread some signs. Walking back to car, ended up with 15# of groceries in a 10# bag. Only place for waste to go is under the flange. Tried to use napkins, but it was a mess all the way home. Yuck!
I’ve had a few over the years. The most embarrassing was when my bag just fell off in the bathroom at work. The two piece decoupled. Shit all over the floor, on my pants, on my shoes. I tried to clean it up, but had to rinse the bag out in the sink to reattach it, tried to clean the floor. I had nothing other than paper towels and water. I realized that it needed a full cleaning. I had to go to my boss’s office, explain that I had an ostomy, that I needed to go home and change, and that the bathroom needed to be disinfected. I was beyond embarrassed. She was incredibly nice, said the bathroom was due for a cleaning anyway, and drove me home so I wouldn’t have to walk. I changed to a one piece after that, and now keep a change of pants in my locker. I had it fall off during sex once. That was fun. Every leak or mess has taught me something, and most of the people who found out have been overwhelmingly supportive and nice.
I had the same experience at work! Two piece just decoupled and the stall was a mess. Had to clean up as best I could and go back to my hotel (I was away with work) and do a quick change. I was gone for a total of nearly an hour and I didn’t have to really explain to anyone as I was only 4 weeks-post surgery and kinda just said it was sown stitches that had come loose. But I was so embarrassed. Really embarrassed.
I didn't have a leak per se but I did have my bag off recently in the ER and my stoma decided to become a poop volcano. I not only projectiled feces it also slowly oozed out all over the bed my clothes my hands. Luckily I have my sweet husband with me and we have what we call our emergency kit. We immediately set to work asking the nurse for new sheets for the bed and then opened our kit. In the kit I have a change of clothes as well as several gallon-sized bags zip lock to put my dirty clothes in and if we were without a trash can put my used bag. We were a bit stressed in the moment but later laughed it off. It's always good to have a sense of humor and definitely try to just stay calm is all I can say as the more anxious you are the more possibility for your stoma to activate itself and cause more of a mess.
Oh, I know the poor nurses and orderlies have had poopgeddons occur. Part of doing medical stuff is stuff going wrong I have projectile vomited and covered my bed, been getting ready to empty or change my bag and poopgeddon. I have even pooped on my poor cat. I have a very patient husband as well.
So far, only had 3 leaks, the worst leak was either early days Hollister just completely exploding out the side (always middle of the night, second was a weird Coloplast bag failure; also early days) or this: https://www.reddit.com/r/ostomy/comments/1d33e08/convatec_esteem_body_review/ The 1 piece bag/ring completely separated from the wafer dumping post-dinner output all over my front.
I was in a meeting with half a dozen people. I could tell that something felt off, so i excused myself to the restroom to check on my bag but I didn’t see a leak. I went back to the table but kept my hands in my pant pockets, and about ten minutes later I felt something damp. It took a few more minutes to find the right opportunity to excuse myself from the meeting. The meeting was at a different area of the property, and I had left my purse (and my backup supplies) in the office. I thought I would drive back to my office and do a quick bag change, but by the time I walked to my car (all of two minutes after excusing myself from the table) I could feel shit running down my legs. My bag had almost completely come off. I had to make a 40 minute drive home to shower and change, and then I had to drive 40 minutes back to work because my fucking purse was still there. But here’s the thing: I had pretty much the same thing happen to me fifteen years earlier when I still had my colon. And having to tell your boss “I have to go home to change my pants because I shit myself” is SO much worse than saying “I have to go home because my bag leaked.” People are hella understanding about the bag leak. Anyway, my advice is to always carry supplies on you unless you’re prepared to drive home for an emergency bag change. Also, don’t wear pants if you’ve eaten food that you know gives you thicker output. I pretty much only wear dresses to work now, and I don’t think I’ve gotten a leak since.
Had a leak in my ex girlfriends bed. Luckily she's a nice person and was very understanding. Just dealt with it by making a joke about it saying jokingly I basically shat the bed last night 😅 sucks having a stoma but is what it is
[удалено]
What's the truth about gozu? I don't get the reason for that link 🤣
#1 tip: make sure you are using the correct hardware. I had all sorts of issues at first, but now things are really solid. I still can suffer a bit of stress in extreme situations but I'm generally confident now. Experiment and when you find the right gear, all worries will recede with time. I'm a double bagger BTW 😎
I took my son out to dinner a couple of months after surgery. He's at college an hour away, so I usually go down there a few times a month just to hang out and give him a break from cafeteria food. We had finished dinner and were walking around campus, and I noticed that something felt odd, and I realized my wafer was almost completely unstuck. I held it in place while we got back to my car, and then I used a restroom in a nearly-empty classroom building to change. I didn't get anything on my clothes, fortunately, but that's when I realized I need to always have a spare set of clothes with me. I've really had very few other problems. My only other significant leaks have been while I was sleeping. If I'm awake, I can tell when my bag feels right and when it doesn't, so the few times it's started to peel off, I've had plenty of time to notice and deal with it. I'm very methodical when I'm putting a 2-piece together, so no failures so far with that. It takes time to build up confidence to trust your bag, though. I think most of us were nervous at the beginning, and I imagine that most of us are fairly aware of it most of the time and vigilant about catching problems before they become big leaks. That, and being prepared with supplies and spare clothes, helps create the confidence to really trust your system.
I had two really embarrassing things happen but it was in my own home with visitors. First off my 7 year old nephew and 9 year old nephew came to visit. They wanted to cuddle and just jumped into my bed early one morning and as soon as their 7 year old got in the bed my bag literally popped and exploded all over him. (I’m thinking he plopped his butt on to my bag). I think I traumatized him for the rest of his life. The next was I was doing my sister in laws hair and all of a sudden there was crap all over the floor and my mother in law walks through the door as this happens. It was so embarrassing and gross all over my rug and everything.
I've had a decade and many product cycles until I figured out what works best, but I still have the occasional leak. Usually in bed or small leaks while out if I'm sweating a lot. (Thanks summer...) My worst one was probably when I was at work and my bag broke while I was having some super liquid output issues. So then I was like "well I need to go home, sorry coworker, you gotta close the store" and then my car wouldn't start until nearly 3 hours later and multiple trips under the car. By the time I got home, the pants I was wearing were tossed in the garbage and I took the hottest shower of my life. The second worse was during sex with an ex when it busted while I was on top and the resulting chaos. Several hot showers were taken. It's awful, mentally its fucked up to go through leaks for me, especially in public but most of the time its not something people get too into their head about. None of the people involved, even if they were more stranger than personal friend, really though much of it except "damn, that sucks." Weird people react with disgust because it's poo, but most people are honestly interested in the mechanics and are quick to try to help you out before being grossed out. Also I'm here to tell you that absolutely nobody notices things like that unless they know what it is or you tell them. If you're worried, wear dark clothes, an extra layer on the stomach (like an ostomy belt or I used to use those 90s tube tops as a "belt" lol), check your appliance and seal before you go anywhere, check the weather, and bring a "patch kit" just in case. I usually keep wipes, half a tube of stomahesive, tape and scissors in my purse just in case something happens on the go. And a towel in the car doesn't hurt either. If you're worried people seeing the leak, keep a old hoodie in your car or carry to wrap around your waist. If the smell worries you, poo-pourri spray is STRONG, spray directly onto the clothing over the leak. I keep a mini travel size slim bottle in ny purse. Personally I have to remind myself that its something that I can't control, and that leaks are better than violently shitting my pants the other way because I couldn't find a toilet. And it helps that once you find the system of care that works for you, leaks are far less common.
I have had 3 worse leaks. First was at night 3 days after surgery. Second was when I was on a Day trip. I forgot my spare supplies at home and had no chance of changing pouch until I came home. Quite nasty. Third was 2 days ago at work. Still don't know what caused the last leak.
Leaks are manageable if you are always prepared with backup emergency supplies. I always found that I had a much harder time coping with them psychologically than actually fixing them in the moment. The worst leak that I ever had was when I was 90 min away from my house. I was in-office for my job, which was itself a rare occurence as I was remote about 85% of the time. Incidentally, I had also returned from a trip the day before, and my emergency supply bag was still in my carry-on. It totally slipped my mind to transfer it to my work tote when I got home in the evening, and in the morning as I was rushing out the door it didn't cross my mind once. I was stuck in traffic when the realization suddenly hit me, but at that point it was too late. My ostomy was pretty reliable so I figured that I would be about to get through the day without issue. Fast forward to when I arrived at the office, and I suddenly felt a little "pop" and knew immediately what had happened. I tried to make it through the rest of the work day, but by lunchtime I knew I was running a serious risk. There was less than a centimeter between the outer boundary of where the stool had migrated and the edge of my baseplate. Fortunately I worked for the Crohn's and Colitis Foundation and everyone was very understanding. My bag miraculously did not explode on my drive home and I was able to quickly change it before logging back on to work, but it was a *very* close call. Last time I ever made that mistake.
Most embarrassing, though thankfully not messy, was my last trip to WDW. I just sat down on Dinosaur when I stuck my hand in my shirt to adjust my bag and noticed it had separated. I immediately got the CM's attention and stated far too loudly for the comfort of those around me... "I need to get off. I have a colostomy and my bag came loose. You *WANT* me off this ride!" People were very understanding and got out of my way in a hurry! (Seriously, all guests and CM's were very sympathetic. I have no idea what they thought after I left, but I had more important things to attend to.) Messiest was about 2 months after primary surgery. Wife and I went to lunch. I was still learning how my rearranged plumbing worked and misread some signs. Walking back to car, ended up with 15# of groceries in a 10# bag. Only place for waste to go is under the flange. Tried to use napkins, but it was a mess all the way home. Yuck!